suziQ
Active member
- Joined
- Oct 30, 2021
- Messages
- 33
- Reason
- PALS
- Diagnosis
- 10/2021
- Country
- US
- State
- MI
Moved from my third floor apartment to a first floor one. While not handicapped it should work for me for a while as my legs are strong. Eating had gotten tougher but i can still do it. Getting a feeding tube the end of the month. Might have to stop taking Riluzole, blood work shows some abnormalities and a hematologist thinks it's related to the Riluzole.
Will also be start using a bipap.
My biggest fear is losing the ability to swallow. I don't so much care about eating, just swallowing. For those of you who had lost that ability can you tell me anything to alleviate the fear and anxiety?
Did not qualify for either of the studies I applied for.
Will also be start using a bipap.
My biggest fear is losing the ability to swallow. I don't so much care about eating, just swallowing. For those of you who had lost that ability can you tell me anything to alleviate the fear and anxiety?
Did not qualify for either of the studies I applied for.