It's been a while since I've posted on here and I had my visit with the neuromuscular specialist last week. We are 90 + % certain I do NOT have ALS or SMA or even PLS!
Things seem to be pointing directly at Multiple Sclerosis and yet they aren't quite ready to give me an official diagnosis yet. I have an appointment with my regular neuro on Jan. 11th and we'll go from there.
What I really want to say by posting here is that I am humbled. Before all of this began with my body I had no idea that there was such a disease as this. I cannot even begin to fathom what those of you who have ALS go through. I only have a small inkling and it was just...well..there are no words really...nothing adequate to describe just the fear of having ALS. Having gone through SMA with my nephew I had a little glimpse but ....well, words are just insufficient.
I cannot leave this board completely. I have to know how each of you are doing now. I will be back again and again and will pray and think of you often. I hope you do not mind. I consider you my heroes and yet I know you do not want this title but YOU are the ones who have made the colors in my life so much sharper, who have made me kiss and hug my children even more and appreciate every second of every day and you have helped me handle the pain and the symptoms. This experience has also taught me so much about the power of positive mindset and living in the present...and never losing hope....
Humbly your friend and prayer warrior,
jennifer
Things seem to be pointing directly at Multiple Sclerosis and yet they aren't quite ready to give me an official diagnosis yet. I have an appointment with my regular neuro on Jan. 11th and we'll go from there.
What I really want to say by posting here is that I am humbled. Before all of this began with my body I had no idea that there was such a disease as this. I cannot even begin to fathom what those of you who have ALS go through. I only have a small inkling and it was just...well..there are no words really...nothing adequate to describe just the fear of having ALS. Having gone through SMA with my nephew I had a little glimpse but ....well, words are just insufficient.
I cannot leave this board completely. I have to know how each of you are doing now. I will be back again and again and will pray and think of you often. I hope you do not mind. I consider you my heroes and yet I know you do not want this title but YOU are the ones who have made the colors in my life so much sharper, who have made me kiss and hug my children even more and appreciate every second of every day and you have helped me handle the pain and the symptoms. This experience has also taught me so much about the power of positive mindset and living in the present...and never losing hope....
Humbly your friend and prayer warrior,
jennifer