corwin
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Hi, I don`t know if somebody is reading the posts but this is a forum, so I make my updates.
Today another EMG, again clear.
Doctor MND ALS specialists told me this time - you have obviously tongue atrophy. My tongue is tingling almost 24/7 and when I stretch it - it quivers for 2-3 seconds and stop.
I have full tongue movement speed, it`s strong, but with atrophy - symetrical from the both sides. The MND spec told me that he don`t know what is this.... He think - no ALS, but can`t say what it is.
I test somehow positive for lyme - it was borderline, and now I`m making big and expensive tests for Lyme and co-infections. I don`t believe that I have Lyme but we will see.
Slurring is more detectable, back side of the tongue make my swallowing hard - it doesn`t move properly. Have problems with saying some words... Trouble with forming..
Voice is hoarse
Post nasal drip
Teeth chattering
Whole body trembling
Whole body weakness
Whole body twitching which are relaxed with the use of Hydroxyzine hydrochloride.
TINGLING in tongue - that are my symptoms now..
The tingling is like battery on the tongue... Real strange. I read about 1 forum member Jellis86- which have the same or 90% same pomplains and in the end he have bulbar... so not good
They are getting worse....
So I will wait to see what`s going on and the result of tests. I visit LLMD and he ordered 12 test for viruses. He think also that it can be virus, who has damaged my cranial nerves - everything starts with flu-like symptoms 1,5 years ago....
SO hope for everything else that ALS, but have inner feeling that it is ALS actually...
Mri clear, but no spinal tab - so MS is not quite expelled...
If I have ALS it will be with sensory nerve damage also, which is rare, so ....
32y.o - rare, Bulbar -rarer, Sensory involment- even more rare....
Today another EMG, again clear.
Doctor MND ALS specialists told me this time - you have obviously tongue atrophy. My tongue is tingling almost 24/7 and when I stretch it - it quivers for 2-3 seconds and stop.
I have full tongue movement speed, it`s strong, but with atrophy - symetrical from the both sides. The MND spec told me that he don`t know what is this.... He think - no ALS, but can`t say what it is.
I test somehow positive for lyme - it was borderline, and now I`m making big and expensive tests for Lyme and co-infections. I don`t believe that I have Lyme but we will see.
Slurring is more detectable, back side of the tongue make my swallowing hard - it doesn`t move properly. Have problems with saying some words... Trouble with forming..
Voice is hoarse
Post nasal drip
Teeth chattering
Whole body trembling
Whole body weakness
Whole body twitching which are relaxed with the use of Hydroxyzine hydrochloride.
TINGLING in tongue - that are my symptoms now..
The tingling is like battery on the tongue... Real strange. I read about 1 forum member Jellis86- which have the same or 90% same pomplains and in the end he have bulbar... so not good
They are getting worse....
So I will wait to see what`s going on and the result of tests. I visit LLMD and he ordered 12 test for viruses. He think also that it can be virus, who has damaged my cranial nerves - everything starts with flu-like symptoms 1,5 years ago....
SO hope for everything else that ALS, but have inner feeling that it is ALS actually...
Mri clear, but no spinal tab - so MS is not quite expelled...
If I have ALS it will be with sensory nerve damage also, which is rare, so ....
32y.o - rare, Bulbar -rarer, Sensory involment- even more rare....