Unusual symptoms

[Hollylyngroff]

I truly appreciate your response! Thank you SO very much!!! This was SO helpful and SO very appreciated!!! I will definitely focus on your recommendations!!!
Thank you!!

 

[Hollylyngroff]

Also I forgot to mention….. left side of face gets a numb feeling, assuming that is due to tight neck?? As numb feeling point away for things like als?

 

[ShiftKicker]

Hi Holly-

Make sure to re-read this link: Read Before Posting. It's informative and also answers questions so folk here don't have to keep repeating the same thing- that sensory issues point towards something else.

It's time to take the advice a reassurance you've been given here and leave the forum behind you.

Take care

 

[Hollylyngroff]

Will do!!! Thank you very much!!! Again I very much appreciate all your help and advice!!

 

[Hollylyngroff]

Hi! I know you said to leave this forum behind me, I have been working on my issues at hand, trying to move forward and figure out what is going on.
3 months into symptoms my emg was performed. Can emgs be preformed too early? I see conflicting evidence. You have been so knowledgeable and helpful in answering all my questions. I apologize for reaching out again. But I truly respect all your answers.

 

[ShiftKicker]

Hi there-

If it's reassurance you seek, please make sure to read the "Read Before" post. A direct quote from there:

EMGs
Does a dirty (abnormal) EMG mean I have ALS?
EMG, properly done, is the gold standard test for ALS. But an abnormal EMG can indicate hundreds of other, non-fatal, diseases. So listen to your doctor.

My EMG was done “too early”

EMGs cannot be done too early. 70% of a nerves fibers die before you feel weakness. An EMG will detect that process long before you can feel it.
Here is a simplified summary:

1. ALS causes nerves to die.
2. EMG detects effects of nerves dying.
3. For ALS, muscles get weak and atrophy when they lose their nerves (no pun intended).
4. Therefore a weak or atrophied muscle due to ALS will absolutely, positively show up on EMG. Clean EMG = No ALS and a clean EMG plus a normal clinical exam = no Motor Neuron Disease at all

Please reread your entire thread and take the answers for what they are- reassurance and information. Any further questions should be directed to your medical care providers as you have been cleared of ALS.

I am closing this thread. Please do not open another. I am really hoping you will be able to leave your fear of ALS behind.

Take care