University of Colorado Advice

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sdsyd

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Hi guys.

Just curious if anyone has heard of or had experience with Dr. Ringle of University of Colorado?
I called insurance today and they are an "In-network" provider. I have only $621.00 out of pocket expenses left until everything is 100% covered, so why not?

If we don't get Dx soon from local neuro am thinking about heading here. We are getting into "dire straits" financially and we need a Dx to get disability. Oct. 1st our local neuro talked about ALS for 45 mins with hubby and I and then asked where we were at emotionally if he were to Dx me today with ALS. I told him " SO WHAT!" I am now regretting it because he didnt Dx me and scheduled followup in January, prescribed Provigil for fatigue and PT. I am currently working 10 hours or so a week.

Your advice as always, is appreciated.


Cindy
 

planningguy

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Cindy,

If you read my "Scared dad..." thread, on the third page, one of the other forum members (Jess), recommended Dr. Ringel. It seems that he has a good reputation. Jess was on the forum last week (according to profile). You might want to shoot a PM for more information.

On the other front. Hang in there. I had to go through the financial grind with my mother's cancer, and had to discontinue Provigil because my insurance won't pay for it without some type of diagnosed. It's stressful, and you are walking a more challenging road than I am.

Will be thinking of you and your family,

Robert
 

CindyM

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Has anybody heard from Jim West lately? He is based outside of Denver and probably know of this Doctor. Cindy- if you go, when will you likely be in Denver? I am going to visit family next week...
 

sdsyd

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thanks guys!

I won't even make the appt. for awhile yet- definately wont be next week- DARN! that would be so fun to see you! The two Cindy M's!
 

sdsyd

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I dont think I can pm him, he only has 5 posts. Diggity dang.

Robert- I dont think I am walking any more of a challenge than you or anyone else, buddy. Life just pulls the rug out from under our feet sometimes- literally lol.
 

Al

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Hey guys. I looked in our user list and we don't have a Jim West unless he uses another user name. I was going to check when he was last on and offer to forward a message to him if you wanted and it wasn't personal.

AL.
 

crystalkk

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Cindy,

You can start your claimand if it gets denied you can appeal it as they told me in Pennsylvania. As I was told alot of people apply and don't have diagnosis yet. I called last summer, and still don't have a diagnosed. I didn't apply yet, I wasn't working anyway. I was trying to get my ducks in a row thinking I was going to have a diagnosed soon not realizing this whole long process.
Hopefully you will have something else. I would move on to specialist he might want to run other tests.
 

rose

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Cindy, I think I wrote to you before about how I sabotaged myself financially by not going out onto disability when my work hours started to drastically decline. Please start to process, even if its denied as a claim without an official diagnosis, it starts the process. And believe me, your doctor is going to want to avoid having to fill out forms repeatedly, if he can avoid it. He will do his best to make it go through for you if that is what you want.

However, if he offers to put you down as diagnosed with MND for the sake of disability approval, think long and hard about that too, because it will affect your ability to get any sort of insurance that you don't already carry in the future.

I'm looking at being paid out somewhere in the neighborhood of 15% LTD of what I would regularly have earned, rather than 60%. I'm actually afraid to try to figure out the exact percentage right now.

Good luck :)
 

mtngirl

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Cindy,

I sent a PM back to you. Let me know if you didn't get it...I wasn't sure how to do it.

Tracy
 

CindyM

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Al- if my memory serves, Jim West signs on as WestLittle. He was on just a few days ago. He was an active poster when I went to Colorado last year and saw the local paper did an ALS awareness article on him. I felt like, no matter where in the world I go, my friends from this forum are always nearby! :smile:
 
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