Unexpected weekend activity!

Status
Not open for further replies.

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
9,368
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
I am spending it in the hospital. Felt so awful last night I went to the ED where they found 4! problems ( none related to ALS) the doctor said any one of the 4 could account for feeling generally horrible. All are probably treatable though they are still doing tests. So MND is on the back burner for once.

Funny thing I have been taken out of my room for tests a couple of times so I have been taken down both corridors ( I am right at the end) I seem to be the only patient on the floor who does not have a sign on the door saying "Fall Risk"
 
Last edited:

Atsugi

Moderator emeritus
Joined
Jan 11, 2011
Messages
5,190
Reason
Lost a loved one
Diagnosis
12/2010
Country
US
State
FL
City
Orlando
I trust you'll be treated like a queen. You deserve it.
 

ShiftKicker

Moderator
Joined
Mar 16, 2015
Messages
3,327
Reason
DX UMND/PLS
Diagnosis
06/2015
Country
CA
State
BC
City
Vancouver
Oh dearie me! Nikki, I wish you speedy treatment and a comfortable stay at the hospital. As Mike says- I hope they treat you like a queen.

Fiona
 

BlueandGold

Senior member
Joined
Feb 28, 2015
Messages
629
Reason
PALS
Diagnosis
04/2015
Country
US
State
WV
City
Sandyville
Wishing you a very speedy recovery Nikki! You know how much I hate hospitals 😷

Vince
 

Ells

Distinguished member
Joined
Oct 26, 2015
Messages
206
Reason
PALS
Diagnosis
03/2007
Country
XYZ
State
MY ACCOUNT
City
PLEASE DELETE
4! things, you don't do things by half, do you Nikki? Glad none are ALS related, but worrying time for you, I'm sure.

Wishing you well,
Ells.
 

Duker52

Distinguished member
Joined
May 22, 2016
Messages
119
Reason
PALS
Diagnosis
04/2016
Country
US
State
Virginia
City
Alexandria
Wishing you a speedy diagnosis and recovery. Stay strong!

Healing thoughts coming your way.

Bill
 

KimT

Extremely helpful member
Forum Supporter
Joined
Nov 18, 2014
Messages
3,975
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
City
The Beach
I hope you're in MG or another clean hospital. I'm terrified of hospitals. When I fell in 2013, I wasn't worried about a brain bleed or broken bones in my face......I was worried about staff or worse. I must have washed my hands in the ED a dozen times with the wipes they keep on the wall. I would sneak off the bed when nobody was looking and grab another one to use after the next test or person came in contact with me.

Thoughts and prayers for a speedy recovery!

Four different things! I hope they can treat all of them, one way or another.

Keep us posted.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
9,368
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
Thanks all. Yes they are being very nice. The tech told me I got the vip room ( at the end of the unit so less noise and fewer people passing by. )

The doctor was just in and of the 4 issues 2 have improved slightly already - (one with treatment, one just because) and 2 are no worse. I am going to need quite a few tests after I go home but I have hope that all will be either resolved or easily lived with. Does anyone know a high protein drink that does not taste foul? I was recommended ensure plus which I can not stand!I was not too crazy about Boost either...

Thanks again for the support!
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
9,368
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
Kim not at MGH. That was too far but I did pass on about 6 closer hospitals - not so much infection concerns but not as nice and more crowded than here
 

JimInVA

Senior member
Forum Supporter
Joined
May 29, 2014
Messages
852
Reason
Lost a loved one
Diagnosis
04/2014
Country
US
State
VA
City
Poquoson
We're both thinking of you, Nikki! Darcey thought the "Fall Risk" sign situation was hilarious. We hope you find more information and appropriate treatment as the weekend moves forward. Our best to you!

Jim & Darcey
 

FrJn

Active member
Joined
Mar 12, 2015
Messages
69
Reason
PALS
Diagnosis
04/2016
Country
US
State
Somewhere
City
Small Town
(((((Nikki)))))... I'll heartily second Mike's motion that you be treated like a Queen... of all those I know you are certainly worthy of that honor!!

Now, as far as the protein drink, you might want to try Ensure. That was originally formulated for diabetics, and I find the taste more than acceptable. They now have some High Protein Formulas that might work for you.

John
 

Firefly

Active member
Joined
Feb 1, 2016
Messages
47
Reason
PALS
Diagnosis
12/2015
Country
US
State
Or
City
Portland
Oh my goodness Nikki,

I hope all 4 issues will prove to be resolvable in some way.
Good for you for listening to your body and seeking medical help.
Ironic none of the issues are MND related.
I'm sending you good thoughts and warm hugs.
Debbie
 

azgirl

Senior member
Joined
Jan 20, 2014
Messages
956
Reason
PALS
Diagnosis
12/2013
Country
US
State
AZ
City
Tucson
This is not the kind of unexpected activity we want to read about for our fearless leader! I was becoming concerned when I notice you posting Less.

Glad you are improving, and I am most certain you will follow all directions! Isn't it a crazy world when we just want to get back to, "just ALS"

Hoping your time in the hospital short and productive.

Side note from The math nerd in me, I read 4! As 4 factorial, which is 4x3x2x1 = 24
Glad there were not 24 problems to deal with!
 

lgelb

Moderator
Forum Supporter
Joined
Nov 5, 2009
Messages
8,902
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
Nikki,
Hoping for swift improvement on all 4 counts!

I would blend my own protein drink using any/all: whey factors, eggs, ice cream, whatever flavoring syrup/extract you like, tofu, milk, peanut or almond butter...and try for more small servings daily than all at once.

Best,
Laurie
 

swalker

Very helpful member
Joined
Dec 11, 2014
Messages
1,245
Reason
DX MND
Diagnosis
07/2014
Country
US
State
CO
City
Vail
Get well soon Nikki. Sorry to hear of your unplanned hospital visit.

Yes, they should treat you like a Queen!

Steve
 
Status
Not open for further replies.
Top