hollymonet
New member
- Joined
- Feb 1, 2021
- Messages
- 2
- Reason
- Loved one DX
- Diagnosis
- 00/0000
- Country
- UK
Hello,
My uncle was diagnosed as having ALS based on an EMG, hand weakness, and his leg tiring after walking. Since then he has seen an ALS specialist who ran a lot of tests. He told us that he 'may' have MMN and will try a treatment for this. My uncle has told us he shows a couple of markers that may suggest MMN and they will see what the treatment does. We are praying this will improve his condition and thankful for an alternative diagnosis.
Does anyone have any experience of this? - there doesn't seem to be a lot online. Could it still be ALS or are the markers for MMN very specific?
- We don't want to hassle him with too many questions.
Thanks
My uncle was diagnosed as having ALS based on an EMG, hand weakness, and his leg tiring after walking. Since then he has seen an ALS specialist who ran a lot of tests. He told us that he 'may' have MMN and will try a treatment for this. My uncle has told us he shows a couple of markers that may suggest MMN and they will see what the treatment does. We are praying this will improve his condition and thankful for an alternative diagnosis.
Does anyone have any experience of this? - there doesn't seem to be a lot online. Could it still be ALS or are the markers for MMN very specific?
- We don't want to hassle him with too many questions.
Thanks