I understand your arguments and they are more than sound. I just contacted them as they are a European company, I can understand the problems they are talking about getting money or recognition. I expect nothing out of this but have nothing to lose, my life? That made me smile.
the new drug is called RCH4 Peptide, I have signed a consent form, and filled an evaluation of sickness they have contacted my neurologist, I sent them my diagnose. and checked out the link they sent me in documentation;
Main
The sponsors of this web site are a voluntary group of retired professionals from different countries. Based in Europe, they have no connection with any other entity and have no external financial support.
Their objective is to bring a potentially new horizon to those affected by ALS - irrespective of their financial status.
This web site is updated about twice per year. Last update September 2015
There can never be any guarantee that any drug is safe for everyone.
Millions of people take Aspirin and eat peanuts -but some cannot.
Information on the new drug RCH4
The drug we are testing is called RCH4. It was and is being tested for the past five years with people who have confirmed diagnosis of ALS. There is evidence that it is better than `Riluzole`, the only approved drug for ALS.
Safety:
We have not seen any side effects associated to the drug itself but since the drug is administered as a small injection, you may experience temporary swelling where the injection entered the skin. We know of no other problem or risks. Because we do not know if the new drug may agree with you, you must accept full responsibility for any side effects or outcomes.
I have no farther information as of this moment, have computer, will post.
Be blessed, now you know