U.S. National ALS Registry Is Open for Self-Enrollment!

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rknt50a

Distinguished member
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Aug 14, 2006
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215
Reason
Lost a loved one
Diagnosis
09/1996
Country
US
State
IN
City
IN
Finally it's here ...
https://wwwn.cdc.gov/als/AboutRegistry.aspx

I encourage all PALS who are U.S. residents to enroll. In the past, the clues from patients' health histories and environmental exposures were not retained. Imo it has been disrespectful of those who have had ALS that we did not retain their clues in a scientific repository.

Starting today that changes.
 
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