I noticed stiffness and weakness on the one side of my neck a while back. like there's a knot in it too. when i push in with my finger(s), the difference in muscle tone between the two sides is astonishing (you can even see it). when I smile wide to the one side, nothing really stands out, when I smile wide to the affected side, it's like a bone or a tendon attached to the bottom of the neck and shoulder (?) is sticking way out, it looks horrible, and you can actually grab it, it makes me squirm just to do it - what is going on? It's so uncomfortable to for me to turn my head to the one side (to the opposite side), it feels like I'm stretching the affected side, it's so tight... I noticed this a while back, but it's getting worse. yet I don't recall fascic's in my neck. and when I flex my buttocks' (I hope this isn't t.m.i., but...), my one side has like a huge amount missing, it's like part of it is cut off - I noticed a boneyness to this area when I was on the stationary bike at the gym way back in August - It was extremely uncomfortable for me to be on the bike, never had before... now that makes sense... there's a lot less musle on that side when flexed...). it's just stuff like this that is driving me mad. sorry, I had to vent! I should have shown this stuff to the Neuro, but everything happened so fast, and her saying "No ALS" took me off guard and made me extremely elated for the moment, and I let everything else slide...
and yeah Laurel thanks for the response. Glad to know things worked out for you and your husband! I hope the same for all in this position. it's maddening, really.
(I clearly went to the Neuro too soon. Now everyone (family, friends) think I'm insane. My Mother, "get on with your life... we don't want to hear anymore excuses" - it makes me ill with anxiety and depression to know that something is really wrong, yet I have to wait so long just for this EMG, I have to depend on my Mom to drive me to it, and if it's all the way in Ottawa she probably won't want to as she thinks that b/c the Neuro said "No ALS" it's the end of story, not realizing how important this test is for me... I don't want to do anything in life until I get this EMG, even if it comes back negative at least I can prove to myself and people close to me that there's something wrong, and work from there. ) again, I'm sorry for this rant.