Tomswife
Senior member
- Joined
- Aug 22, 2022
- Messages
- 688
- Reason
- Lost a loved one
- Diagnosis
- 08/2022
- Country
- US
- State
- NJ
- City
- Livingston
Tom is PALS with bulbar onset. He just started having twitching in his thighs and also his foot flexing on its own. We understand these symptoms are part of ALS. He does sit a lot. He is on Riluzole, Tudca, Nudexta and other rx for hbp&cholesterol.
I have been encouraging him to stand more to get weight on his legs. He can stand for short periods. (I see lots of references to this symptom but they are on the "could this be" thread). Is there any treatment for this. Difficult to sleep. Thanks.
I have been encouraging him to stand more to get weight on his legs. He can stand for short periods. (I see lots of references to this symptom but they are on the "could this be" thread). Is there any treatment for this. Difficult to sleep. Thanks.