Jonsie150
New member
- Joined
- Feb 17, 2021
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
At the beginning of this year, my mom's doctors told her she likely had advance stage cancer. I didn't take the news well, of course. I wasn't sleeping, and I was crying on and off.
It was a truly traumatic experience. I started developing body symptoms the same week I got the news:
- It started with a vague pain that went up and down my left leg, this has mostly resolved itself.
- I began twitching. It started off with 1-2 episodes a week. It was around my body, but mostly in my left foot's arch. It would twitch non-stop for hours and drive me nuts. 2-3 weeks later the twitching became less-focused on my foot, and more all over my body (arms, calves, thighs, lip, etc). I get these daily. They're not quite as persistent as my initial episodes, but they're still very concerning.
- One night, possibly cause I was sleeping in a weird position on my belly, I woke up and found that my left knee was numb/locked up. I wobbled as I stood up but the feeling came back in a few seconds and I was walking fine. Later that day, as I did some stretches, the knee locked up and, as I straightened it out, I heard a "pop" and felt a lot of pain. It swelled up later that night, but there were no issues with the knee after that. I can still run, do yoga, etc.
- I also mentioned possible hyperreflexia, though most of these symptoms only happen at night as I try to sleep:
1. My body is jerky when I try to sleep. My shoulder or finger or leg (either side) might lurch a bit.
2. I get night sweats in my chest area. I wonder if its cause I've been clutching a body pillow too tight.
3. Early on, I had a routine doctor visit and my blood pressure was high at 140. Though I was also fairly stressed, so maybe it was that. (Sidenote: I mentioned my symptoms to my doc, but all he did was take a look at my physical from December and said the bloodwork looked fine. He said I was prob having a reaction to my mom's health.)
So those are my symptoms. I understand that the timing of it suggests that its a bad psychosomatic reaction to my mom's health. But I don't know why these symptoms still persist a month and half later.
My mom actually just had a bit of good news: her doctor says a new drug on the market can keep her cancer at bay for a few years. I was very happy for her. And I thought, maybe, this would alleviate some of my symptoms, but they're largely still there. I try to remind myself that I don't have any muscular issues, but I think I'm still spiraling. It's been a tough couple months. Do my symptoms sound like ALS?
It was a truly traumatic experience. I started developing body symptoms the same week I got the news:
- It started with a vague pain that went up and down my left leg, this has mostly resolved itself.
- I began twitching. It started off with 1-2 episodes a week. It was around my body, but mostly in my left foot's arch. It would twitch non-stop for hours and drive me nuts. 2-3 weeks later the twitching became less-focused on my foot, and more all over my body (arms, calves, thighs, lip, etc). I get these daily. They're not quite as persistent as my initial episodes, but they're still very concerning.
- One night, possibly cause I was sleeping in a weird position on my belly, I woke up and found that my left knee was numb/locked up. I wobbled as I stood up but the feeling came back in a few seconds and I was walking fine. Later that day, as I did some stretches, the knee locked up and, as I straightened it out, I heard a "pop" and felt a lot of pain. It swelled up later that night, but there were no issues with the knee after that. I can still run, do yoga, etc.
- I also mentioned possible hyperreflexia, though most of these symptoms only happen at night as I try to sleep:
1. My body is jerky when I try to sleep. My shoulder or finger or leg (either side) might lurch a bit.
2. I get night sweats in my chest area. I wonder if its cause I've been clutching a body pillow too tight.
3. Early on, I had a routine doctor visit and my blood pressure was high at 140. Though I was also fairly stressed, so maybe it was that. (Sidenote: I mentioned my symptoms to my doc, but all he did was take a look at my physical from December and said the bloodwork looked fine. He said I was prob having a reaction to my mom's health.)
So those are my symptoms. I understand that the timing of it suggests that its a bad psychosomatic reaction to my mom's health. But I don't know why these symptoms still persist a month and half later.
My mom actually just had a bit of good news: her doctor says a new drug on the market can keep her cancer at bay for a few years. I was very happy for her. And I thought, maybe, this would alleviate some of my symptoms, but they're largely still there. I try to remind myself that I don't have any muscular issues, but I think I'm still spiraling. It's been a tough couple months. Do my symptoms sound like ALS?