Twitching getting worse

[harryau]

Hi,
Thank you for this forum.

45/M.

I was always a twitcher. I can't remember when it started, but I have probably had it for years. They were sporadic and had I twitches intermittently around my body but not very often - say 20 times a day, in the past.

2 months ago, they increased in frequency with a feeling of tremor. I say it is a feeling because I do not tremble, but it feels as if I do. The twitches are 24/7 now in both of my calves, and some twitches are sporadically happening in different areas. My thighs also started to twitch a lot.

I don't feel any weakness, as described in the sticky message, but I realised that there is a difference in size between my calves. Today, I realised that they are different in size. Maybe I favour one leg, and it is overly musculated? I really have no idea. My thinking is that if any atrophy was in place, I should have felt weakness already. Is my thinking correct in your view?

I know here is not a place for medical diagnostics, but my thinking is:

- BFS (given my history of fasciculations )
- Spinal problems (I got a herniated disk)
- MS (tremors and twitching)
- ALS (given my age is 45 (only 9% of the cases), and I only have fasciculations and not weakness (7% of ALS cases), this is a low probability)

Any thoughts?

Cheers,
Harry

 

[ShiftKicker]

Hi Harry-

You've posted about twitching, but with none of the hallmark symptoms of MND/ALS- namely clinical weakness and atrophy. That can only be properly assessed for and diagnosed by a medical professional. That's where you should start, as you say, this isn't the place for diagnosis. Difference in size from left to right side is not atrophy- all bodies are asymmetrical and there are different reasons for this, many of which are entirely normal variations.

It sounds like you are organized and are trying to approach this logically. Before you let the worry about a terminal disease get the best of you, go see a doctor for a proper assessment. That way you can ask your questions and have them talk you through the exam and provide you feedback based on observations.

Take care

 

[harryau]

Hi ShiftKicker,

Thanks for your time and answer. No, I don't feel any weakness or have any visible atrophy straightaway. You always think of that small percentage of unlucky people you might be a part of, and they miss the diagnosis, etc.

The small chance of fasciculations before weakness onset and the fasciculations constantly reminding themselves sometimes get on your nerves...

Hi,

I just want to share this ALS tool here created by the ALS association. The tool is created to increase the awareness and a good soothing bunch of information for the people twitching without weakness.