Twitching Eye Lid

[seanmucci]

Just A Silly Question I Suffer With A Slow Progressive Form Of Als.i Have Had Some Moderate Twiching In On My Left Eye Lid For A Couple Days .has This Happend To Any One Else.small Question In The Scope Of Life .stay Strong And Focused Fellow Als Warriors I'm Praying For Us All

 

[BethU]

Sean, I have experienced that in my right upper eyelid just in the last month. It's very annoying, because I can feel the twitch (unlike most of my fasics), and it also felt like something (the muscle I guess) is forceably pulling my eyelid down, and holding it there.

It has gone away now, thank heavens. I've had twitches under my eyes for several years, which I can't feel. They seem to be harmless.

 

[patricia1]

Finger movement

Has anyone with ALS start with involuntary thumb or finger movement. Where your holding a phone and your fingers are moving by themselves

Thanks Pat

 

[kanorman]

Dancing fingers

Hi Pat,
I started noticing weakness in my left hand in Sept 2007, within a few weeks my fingers began to move involuntarily. My thumb was the worst for the next couple months, but it has now spread to all my other fingers. If I leave my hand on top of my lap or a table you can get quite the dancing fingers show! As the weakness has progressed to my right side I am starting to get those movements in my right hand as well. I was officially diagnosed with ALS in August 08. Hope this helps.
Kathy

 

[rose]

Pat, I didn't start with this, but it happens. I made a YouTube video so I could allow my neuro to see it. It is the #9 post on the "Read this about EMG & ALS thread over on the Do I Have ALS, Is This ALS Forum. My hands most often do this when I first start to drift off to sleep.

About the twitchy eyelid, I think that is an area that every person on this planet gets from time to time. I've been having more of the ones I can't feel, like BethU was talking about, and then the other day the inside up in the inside over my eye at the bridge of the nose was quite noticeably doing it. Never had that before and it was amazingly annoying.

 

[MarianneS]

eye twitch

This is my first post to the board, although I have been reading it since my diagnosis in June 2008. I have recently started with twitching in my left eyelid and it droops as well. I too have bulbat onset. I have twitching throughout my body, some I can feel, others not. This is a very basic question I know but how long does the twitching continue and does it get less and less as the muscles stop working?

 

[JohnMc]

I have had the eye twitch off and on for the last four or five months. So far, it is mostly on my right eye.

I also have the problem with my fingers twitching. This is a particular problem when I am using a computer mouse - I will often click on something randomly!

 

[BethU]

Marianne ... welcome to the board. I sure wish you didn't have to be here.

That's a terrific question, and I'd like an answer to it too. I don't think any of my twitches have gone away since they began ... except possibly the fasics on my tongue. I do not see the activity there that I did a year or so ago, but the atrophy is quite advanced.

 

[MarianneS]

eye twitch

Thanks Beth, I can only wish we all met somewhere else.

My mother was diagnosed at age 86 with bulbar onset. She never mentioned any symptoms besides those readily noticeable like speech and swallowing and she died within eighteen months. I'm 53, was always her favorite, ha ha, guess that's why I'm the lucky one.

 

[brendapals]

Marianne,
Welcome to the family! I'm sorry you had to join us, but hopefully, you'll find support, friendship and some laughter on here that will ease your journey.

I was also diagnosed in June 08 with bulbar onset. I am 48. My oldest brother was diagnosed when he was 56 and passed away 14 months later. I'm certainly hoping to make it much longer than he did!

As far as the twitches go, I have some in my left upper arm, and they are sometimes in my right upper arm, last week I had a few in my stomach, didn't know what to think about those! They are painless to me. Just odd. The twitches in my tongue are still there and I think that's what impressed my neuro on my initial visit.

Never give up,
Never let up,
Never lose faith,
brenda

 

[patricia1]

I dont think there is anyone in the world that hasnt has eye lid twiticing at least once in their life.Its a common thing!
Pat

 

[bwagn]

i had bad twitching in my left eye , my weaker side, for a couple of months this spring, it 's stopped .