"There are quite a lot who have had clean EMG's and later been diagnosed"
I've already addressed that.
"most concerning to the posters here is the fact that not only are they twitching, but they have other complaints and really feel quite ill"
As I said, I am addressing those with only twitching. I would never make light of anyone's suffering.
"And as far as BFS, fibromyalgia, all those "syndromes", they're just a catch all for "we don't know what is wrong". Twitching is because of irritation of muscles or nerves of some type, just for a reason researchers haven't uncovered yet. Myself, I would much rather have a clear explanation instead of pasting some name on something they don't know about."
And we don't really know what is causing ALS either. In fact, many many diseases and conditions we don't know a cause for. Just because we don't know what causes plaque to form in alzheimers patients doesn't make it an unreal disease. What we do know about BFS and fibromyalgia is that they don't kill anyone. Personally, I would rather have a benign diagnosis and an unclear explanation than a very specific death sentence.
"I just wanted to add, that I was quickly turned off by the website aboutbfs.com when I noted so many grammatical and spelling errors. I have always found reliable websites don't have problems such as those!"
I have no idea who wrote the information pages, and I am unrelated to the site in any way, but the idea that reliable websites "always" are written in perfect English is odd logic.
In any event, I am posting reliable information here in an attempt to reach the small portion of this site's users who are obsessing over ALS when their only symptoms are generalized twitching, and they have had clean neurological work-ups, including EMG's, etc. My thought was to be a source of comfort and support to these people. I am also a volunteer for the ALS Association and have posted on here asking if any ALS sufferers in my area need help of any type. If my posting is unappreciated and a cause of suffering, I will certainly stop. That is not at all what I intended.