Jeff1987
New member
- Joined
- May 12, 2019
- Messages
- 5
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- OH
First off I want let everyone who is suffering from this horrible disease know that I appreciate your replies and pray you all live the best life possible. Hopefully a cure is found soon.
I'm not really sure whats going on but for about 5 months now I have had twitching all over my body in every place possible, even inside my ear to where I can hear and feel them and they are very annoying.
About 4 days ago I started getting a feeling of being short of breath and it has shown no signs of getting better. I do have twitches in my stomach and chest that I just noticed when the shortness of breath started. I feel the twitches a lot more when I am laying down and it seems even harder to breathe laying down. What I'm wanting to ask is, is it possible the twitches are causing the shortness of breath and has anybody with ALS started out with early respiratory onset just a few months after the twitching started?
I can still walk and stand on my toes and heels and climb stairs. I'm just really worried at the moment.
I can't get the doctor to refer me to a neurologist.
Thank you for any replies.
I'm not really sure whats going on but for about 5 months now I have had twitching all over my body in every place possible, even inside my ear to where I can hear and feel them and they are very annoying.
About 4 days ago I started getting a feeling of being short of breath and it has shown no signs of getting better. I do have twitches in my stomach and chest that I just noticed when the shortness of breath started. I feel the twitches a lot more when I am laying down and it seems even harder to breathe laying down. What I'm wanting to ask is, is it possible the twitches are causing the shortness of breath and has anybody with ALS started out with early respiratory onset just a few months after the twitching started?
I can still walk and stand on my toes and heels and climb stairs. I'm just really worried at the moment.
I can't get the doctor to refer me to a neurologist.
Thank you for any replies.
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