Laurenelise
New member
- Joined
- Jul 11, 2021
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- AU
Hello,
I am 28 years old.
4 weeks ago I experienced a knee twitch, fast forward 4 weeks, and I’m experiencing muscle twitching all over my body. I also recently noticed around the same time, I’ve been getting “wet flatulence” (never had before) which I read is a sign of nerve damage associated with ALS, called neurogenic bowel.
I did have an EMG done on my right side which was clean, and also a clean clinical. I’m just worried these were done too early, and my nerves are still in the “excitability” stage before the nerve death occurs. Other symptoms include: pins and needles, crawling and other sensations.
I also ready on an ALS forum (not this one), that some individuals with ALS had all over body twitching, and some had this for years before being diagnosed with ALS. These could have been individuals that were misdiagnosed. However, I did read some individuals with ALS did have all over twitches, they also had a dirty EMG. But again, my fear of the EMG being done too early due to twitching only being 4 weeks in, makes me feel I have no way to tell if this is BFS or early ALS.
I know I’m young, I know I don’t have weakness, I know I had a clean EMG and feel like I have no right to be here. But the fear of ALS has almost ruined my life. I’ve been hospital so many times with unbearable panic attacks. I know some individuals with ALS did have twitching first, even if it is not a common presentation so how can I tell?
Was my EMG done too early? Should I get my rectum checked too with an EMG?
I really appreciate your time and assistance. Thank you
I am 28 years old.
4 weeks ago I experienced a knee twitch, fast forward 4 weeks, and I’m experiencing muscle twitching all over my body. I also recently noticed around the same time, I’ve been getting “wet flatulence” (never had before) which I read is a sign of nerve damage associated with ALS, called neurogenic bowel.
I did have an EMG done on my right side which was clean, and also a clean clinical. I’m just worried these were done too early, and my nerves are still in the “excitability” stage before the nerve death occurs. Other symptoms include: pins and needles, crawling and other sensations.
I also ready on an ALS forum (not this one), that some individuals with ALS had all over body twitching, and some had this for years before being diagnosed with ALS. These could have been individuals that were misdiagnosed. However, I did read some individuals with ALS did have all over twitches, they also had a dirty EMG. But again, my fear of the EMG being done too early due to twitching only being 4 weeks in, makes me feel I have no way to tell if this is BFS or early ALS.
I know I’m young, I know I don’t have weakness, I know I had a clean EMG and feel like I have no right to be here. But the fear of ALS has almost ruined my life. I’ve been hospital so many times with unbearable panic attacks. I know some individuals with ALS did have twitching first, even if it is not a common presentation so how can I tell?
Was my EMG done too early? Should I get my rectum checked too with an EMG?
I really appreciate your time and assistance. Thank you