tumeric or curcumin

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lisa g

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Is this what you ordered? This is what Dr Bedlack recommends. And yes he is very knowledgeable on supplements.
 

gmorthland035

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Has anyone used curcurmin with a feeding tube? I stopped using it when I had my PEG put in....afraid of it will stain and stick to the tube.
 

lgelb

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There are liquid forms, which you could thin with water. Liquid Hope has some included in the formula. Some tube feeders report blending some directly into their real food blends.
 

morleyde

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Morleyde,View attachment 19846
Is this what you ordered? This is what Dr Bedlack recommends. And yes he is very knowledgeable on supplements.
I tried it for 30 days during Dr. Bedlack's trial. I had purchased a large supply if Curcumin from a big box store and have been taking it with a pepper pill to increase its absorption. I will probably switch to Dr Bedlacks recommendation when my other supply is gone. I have not noticed any difference between the two. I don't know if either helped. I take it because it is recommended.
 

KimT

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I think all the essential amino acids might be of use. L-Serine is non essential, meaning your body makes it, but sometimes a body can't utilize it efficiently or may need more, so I definitely take it.
 

lisa g

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I also take L-Serine, 1000mg a day. I have always taken Lysine even before I was diagnosed.
 

kellysal

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What could I add to my supplements to help with GI issues from Tudca? I’m currently on Riluzole, Theracurmin, l Serine and Vitamin D , B 12 shots. Every time increase to 750 mg from 500 mg 2x (with food) I get diarrhea and nausea. I have increased slowly over a 2 week period. Then I stop everything for 2 days. Any thoughts?
 

lisa g

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Are you taking it on an empty stomach? I break mine up during the day. 750mg after breakfast, 750mg after lunch then 500mg after dinner. So for no GI issues.
 

kellysal

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Hi Lisa
I’m taking 1000 mg after Breakfast and 1000 mg after Dinner. I’ll try 3 times a day lower dosage this week
Thank you
 

lisa g

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Kelly - hope spacing it out alittle more helps you out.
 

Samkl

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How will that play out if people have manage to get a prescription for sodium phenybutyrate as well? If they are both being taken, shouldn’t they be taken together?
 
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