mally
Member
- Joined
- Jul 6, 2010
- Messages
- 13
- Reason
- PALS
- Diagnosis
- 06/2010
- Country
- UK
- State
- England
- City
- Birmingham
Hello
Recently diagnosed with lower motor neuron disease and looking for any help and support anybody feels they can give me. I can't tell you how I feel but I suppose most people on here have been through it.
There's loads of stuff I don't understand and would appreciate any ideas people have on it. My neurogolist says I don't fit the pattern for motor neuron as I have 'slight' damage in many muscles in my body. I have also tested quite high for myasthenia gravis but doesn't that happen sometimes anyway with some people with mn? Being treated with mestinon at the moment-can't say I notice a great difference through my strength does vary throughout the day. Does anyone else have that? Sorry to ask so many questions-just trying to get my head round things.
Mally
Recently diagnosed with lower motor neuron disease and looking for any help and support anybody feels they can give me. I can't tell you how I feel but I suppose most people on here have been through it.
There's loads of stuff I don't understand and would appreciate any ideas people have on it. My neurogolist says I don't fit the pattern for motor neuron as I have 'slight' damage in many muscles in my body. I have also tested quite high for myasthenia gravis but doesn't that happen sometimes anyway with some people with mn? Being treated with mestinon at the moment-can't say I notice a great difference through my strength does vary throughout the day. Does anyone else have that? Sorry to ask so many questions-just trying to get my head round things.
Mally