ariet
New member
- Joined
- Dec 10, 2016
- Messages
- 2
- Reason
- Loved one DX
- Diagnosis
- 09/2016
- Country
- GR
- State
- attica
- City
- athens
I’ m here with you, for my precious mother, who is 69 years old; she was diagnosed with Als in September 2016. Until then, she was a very very active person. All those months we have made great efforts to slow down the disease, but it did not work. Her symptoms started in April 2016, in September she couldn’t walk anymore, and now in February she needs the mask for breathing most of the day and she is very weak. The disease is so rapid to my mother.
She follows a diet with antioxidants and vitamins; she was visiting a rehabilitation center 3 times a week for 3 months. She made a therapy with stemcells, the first input was 2 weeks ago. She is taking at the same time, for 3 weeks now, the antiepileptic drug retigabine, which is causing her headaches.
I can’t understand why the disease did hurt so fast her breathing muscles which are the vulnerable point of the patient. Could it be because of the intense physiotherapy and ergotherapy? Could it be because of the disability to walk and go out? Could it be because of limited fluids-water etc.?
Is there any guidance for keeping the breathing muscles? She is breathing rapid. Perhaps some exercise with deep breaths could help?
Thank you all,
ariet
She follows a diet with antioxidants and vitamins; she was visiting a rehabilitation center 3 times a week for 3 months. She made a therapy with stemcells, the first input was 2 weeks ago. She is taking at the same time, for 3 weeks now, the antiepileptic drug retigabine, which is causing her headaches.
I can’t understand why the disease did hurt so fast her breathing muscles which are the vulnerable point of the patient. Could it be because of the intense physiotherapy and ergotherapy? Could it be because of the disability to walk and go out? Could it be because of limited fluids-water etc.?
Is there any guidance for keeping the breathing muscles? She is breathing rapid. Perhaps some exercise with deep breaths could help?
Thank you all,
ariet