hollyt
Member
- Joined
- Mar 28, 2011
- Messages
- 13
- Reason
- Loved one DX
- Country
- US
- State
- CA
- City
- El Dorado Hills
My husband was diagnosed over 3 1/2 years ago. Prior to diagnosis he was a very fit, active man who could multi-task with the best of them. Now he sits in his office most days with one finger that still works to type with...he's kept himself busy creating on-line companies his latest (Disabilityreports) a .org company. I love that he's creative and keeps busy and channels himself into projects that are meaningul and helpful to others but now that the one finger is starting to go I think we're headed for trouble.
I work from home and we've hired a caregiver to come from 10-4 to help make sure he gets a healthy lunch and shower and can get some stretching in and a bit of a workout on his bike. Although I work from home I am still working during working hours, I do come down to enjoy lunch together and make sure we start the day with our coffee and some breakfast together.
We have a 10 year old and a 15 year old and it seems so darn difficult balancing everyone's needs. He feels like he's wasting away in his office because he doesn't get out much......but again, neither do I. He's angry and feeling neglected, much like the kids, and I'm struggling to feel like I can make a difference anymore...how are the rest of you balancing your time?
Holly
I work from home and we've hired a caregiver to come from 10-4 to help make sure he gets a healthy lunch and shower and can get some stretching in and a bit of a workout on his bike. Although I work from home I am still working during working hours, I do come down to enjoy lunch together and make sure we start the day with our coffee and some breakfast together.
We have a 10 year old and a 15 year old and it seems so darn difficult balancing everyone's needs. He feels like he's wasting away in his office because he doesn't get out much......but again, neither do I. He's angry and feeling neglected, much like the kids, and I'm struggling to feel like I can make a difference anymore...how are the rest of you balancing your time?
Holly