Jay R
Member
- Joined
- Jan 31, 2021
- Messages
- 12
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NY
Hi all I’ll be brief in describing a situation which has been concerning for a few months. Hopefully I can receive some input which will give me greater clarity. Thank you in advance for your time.
me: 26 y/o male, I had an episode of widespread fairly intense fasciculations at the age of 13 but it went away after a few months.
The situation that has been bothering me began on January 1st. The arches of my feet began twitching while at rest, but it wasn’t in the way that I remembered it occurring as a child. These were localized to just my feet and the fascics were slow and minute. A week later I was getting them all over: arms legs, hands, shoulders, tongue, face, neck, stomache- everywhere. These were normal fasciculations that would fire or rapid fire then cease though. The feet ar were constantly twitching in this odd way while at rest. I began moving them constantly to relieve the discomfort.
I began having great anxiety about this, and it has been impacting my sleep. Additionally, my feet when I pointed them would cramp.
I started feeling mentally better as it went on because the feet fasciculations stopped for about 2 days, then began again. It’s somewhat cyclical. The cramping cleared up as well for a few weeks. So far no major issues with motor function in the feet I think although it’s hard to say, because I’m really thinking about my feet when I’m walking now.
A few days ago (2/20 ish) my hands became the focus of the fasciculations. Additionally there are slight pains in my hands, and it’s unclear if these are cramps. I’ve never had hand cramps so I’m unsure what they feel like. These pains are sharp and small and are usually relieved with massaging the hand. This feeling also occurs in my feet. As of tonight, my feet are cramping again when I point them and the fasciculations are back there too.
The last symptoms I will report is extremely sweaty feet and episodes of difficulty breathing with no associated panic or elevated heart rate, especially while I am in cars. Not sure what to make of that of course.
The doctor told me to wait and see essentially. Once again I began noticing the fascics on January 1st and now it is February 22nd. Any input you could add is helpful as this has caused great anxiety. I truly just want the twitching to stop so I can get on with my life. Thank you so much.
me: 26 y/o male, I had an episode of widespread fairly intense fasciculations at the age of 13 but it went away after a few months.
The situation that has been bothering me began on January 1st. The arches of my feet began twitching while at rest, but it wasn’t in the way that I remembered it occurring as a child. These were localized to just my feet and the fascics were slow and minute. A week later I was getting them all over: arms legs, hands, shoulders, tongue, face, neck, stomache- everywhere. These were normal fasciculations that would fire or rapid fire then cease though. The feet ar were constantly twitching in this odd way while at rest. I began moving them constantly to relieve the discomfort.
I began having great anxiety about this, and it has been impacting my sleep. Additionally, my feet when I pointed them would cramp.
I started feeling mentally better as it went on because the feet fasciculations stopped for about 2 days, then began again. It’s somewhat cyclical. The cramping cleared up as well for a few weeks. So far no major issues with motor function in the feet I think although it’s hard to say, because I’m really thinking about my feet when I’m walking now.
A few days ago (2/20 ish) my hands became the focus of the fasciculations. Additionally there are slight pains in my hands, and it’s unclear if these are cramps. I’ve never had hand cramps so I’m unsure what they feel like. These pains are sharp and small and are usually relieved with massaging the hand. This feeling also occurs in my feet. As of tonight, my feet are cramping again when I point them and the fasciculations are back there too.
The last symptoms I will report is extremely sweaty feet and episodes of difficulty breathing with no associated panic or elevated heart rate, especially while I am in cars. Not sure what to make of that of course.
The doctor told me to wait and see essentially. Once again I began noticing the fascics on January 1st and now it is February 22nd. Any input you could add is helpful as this has caused great anxiety. I truly just want the twitching to stop so I can get on with my life. Thank you so much.