GilWest
Distinguished member
- Joined
- Mar 1, 2014
- Messages
- 359
- Reason
- Lost a loved one
- Diagnosis
- 01/2014
- Country
- US
- State
- WV
- City
- Southern
Since mom has gotten so unsteady it is truly unsafe to travel by car, it has been 6 months since last visit to ALS clinic. She did see local neuro, gastro, nutritionist, and pulmo when she got her PEG 2 months ago and the facility doc seems to be up on how to comfort her and deal with symptoms as they arise. I wonder if trying to make the trip could be worth it. I really need to get her some better way to communicate than a pad of paper. . Does the MDA help with things like this? We have no ALSA in WV. They are supposed to call me back on Monday.