lisatsmith13
Member
- Joined
- Jul 8, 2021
- Messages
- 15
- Reason
- PALS
- Diagnosis
- 06/2021
- Country
- US
- State
- AL
- City
- Cowarts
I am getting very anxious and frustrated that I have not been able to start Radicava yet. I know it is expensive, but Searchlight is working on my case too. My walking has gotten worse-I fell 2 times last week. A friend gave us a walker, which I may have to use soon, and we bought a wheelchair for longer distances. But I think if I had the Radicava that the progress of the disease would slow down. How long did it take others to get started on infusions?