BiPAP stands for Bi-level Positive Airway Pressure. It is a breathing apparatus that helps people get more air into their lungs. With the development of BiPAP, air delivered through a mask can be set at one pressure for inhaling and another for exhaling. This makes BiPAP much easier for users to adapt to and also allows neuromuscular disease sufferers to use the device. Because of these dual settings, BiPAP allows people to get more air in and out of the lungs without the natural muscular effort needed to do so.
Your question about having trouble getting enough air led me to recommend seeing a doctor.
I've been using bipap for almost 4 yrs for sleep apnea. My husband said I used to snore like a freight train. I went to the pulmo for the snoring problem, had a sleep study done, and sure enough had sleep apnea.
I never had thought that I had more energy when I woke up until the last 3 weeks! I have to admit I wasn't always compliant with wearing it at night, fall asleep on the couch, too tired to put the thing on, any number of excuses.
However, in the past 3 weeks, I thought I would try it again. Since my diagnosed of ALS on 6/3/08, I hadn't had any breathing problems, my pulm fx was 96% on 7/1/08, but I do notice some shortness of breath at times. Those menthol cigarettes ( 6 per day ) don't help matters either and I know that.
But it's working great for me now, nothing to fear, we'll help you with it all we can.
Hi Happy. I fully understand. When they first raised the possibility of ALS I came here to prepare myself. I figured out that I would be ok if I needed help with daily activities or needed to use a cane or chair, learned to substitute certain activites for those I can do, the whole nine yards.
But I did not prepare myself for having trouble breathing. There is just no way to wrap our minds around that. I joke that breathing is over rated but I feel the anxiety, too. Good luck on you PFT's.
I get my "sniff" test tomorrow, and am no longer freaked out by the idea that my weakness is spreading to my chest muscles. Proof that human nature can get used to anything! :-D
I have the breathing issue when trying to take a breath in deep. I have had it since last august while pregant and thought it was that. It did not go away after the baby or the recovery. It is not tooo bad, but I have to take a real deep breath in to feel that I am getting a deep breath. I go for a pulmonary vist on sept 9th and I am a little nervous.
BTW, my dad has a bi-pap for his sleep apnea. It seems to help him alot.
I have a C-Pap (not a Bi-Pap) at present. It is great. I only use it at night or when I am taking a nap.
My O2 level has dipped to 81%. So I now have oxygen bled into my C-Pap.
It is a wonderful tool, if you need it. If you do happen to require a C-psp or Bi-pap, once you get used to the machine, you will find it is such a benefit. Other than wearing a mask. It is non-invasive.
I get most my answers from my Pulmonary Doc. They even help to refer me for swallowing studies, etc.
Hi Jim- After using the CPAP I wake up feeling all shaky inside. My lungs burn like they did when I ran too far (back when I could jog.) I am glad you are able to tolerate a CPAP, though I suppose it does not make much difference. Whatever works, is what I always say!