Trilogy settings

HiBob

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Feb 9, 2017
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I have been using my Trilogy at night for 1.5 years and for the past 6 months appropriately 6-8 hours during the day. Lately I have been having issues, usually in the morning, where I struggle with exhaling. The Trilogy is ramped up with strong inhalation breathes and I tend to take in 5 or 6 breathes before I groan and force out a long exhale, if that makes sense. My wife would calm me down and eventually my breathing gets back under control.

To be honest, I know very little about what the setting options are on the Trilogy. I don't believe the settings have been changed since I have received it, or if they should be as I progress. A RT comes to the house every few months, gives us supplies, checks the machine and I believe replaces the memory card to get my information, but I don't think she has ever changed settings. This exhaling strangeness may be anxiety and nothing to do with the Trilogy settings???

Thanks for any advice.
 

Nuts

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Call that RT and describe what you are experiencing. Ask about adjustments. They won't change settings until something changes. It sounds like that may be happening.
 

lgelb

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Hi, Bob, I'd be happy to help you adjust your settings, as have for many here. It does sound like they could use some updating. I'll PM you. EDIT: I can't actually PM you right now, due to a glitch in the new software.

Best,
Laurie
 
Last edited:

HiBob

New member
Joined
Feb 9, 2017
Messages
9
Reason
PALS
Diagnosis
1/2017
Country
US
State
Michigan
Thank you Nuts and Laurie for responding. I remember seeing posts in the past that discussed Trilogy settings. I really didn't pay attention to them at the time. I tried a search, wanting educate myself, but came up with nothing. I will talk to RT tomorrow and see if she has any suggestions.
 

nona

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Oct 1, 2018
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PALS
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02/2015
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I have used the Trilogy for four years and in my experience the RT will not adjust the settings without doctor's orders. Do you have a sleep doc or pulmonologist you could contact? Or could you get a referral? I see a sleep doc in my ALS clinic and we always review and discuss my settings.
 
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