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Trilogy settings

HiBob

New member
Joined
Feb 9, 2017
Messages
9
Reason
PALS
Diagnosis
1/2017
Country
US
State
Michigan
I have been using my Trilogy at night for 1.5 years and for the past 6 months appropriately 6-8 hours during the day. Lately I have been having issues, usually in the morning, where I struggle with exhaling. The Trilogy is ramped up with strong inhalation breathes and I tend to take in 5 or 6 breathes before I groan and force out a long exhale, if that makes sense. My wife would calm me down and eventually my breathing gets back under control.

To be honest, I know very little about what the setting options are on the Trilogy. I don't believe the settings have been changed since I have received it, or if they should be as I progress. A RT comes to the house every few months, gives us supplies, checks the machine and I believe replaces the memory card to get my information, but I don't think she has ever changed settings. This exhaling strangeness may be anxiety and nothing to do with the Trilogy settings???

Thanks for any advice.
 

Nuts

Forum Supporter
Very helpful member
Joined
Feb 23, 2014
Messages
2,494
Reason
Lost a loved one
Diagnosis
01/2014
Country
US
State
North Carolina
Call that RT and describe what you are experiencing. Ask about adjustments. They won't change settings until something changes. It sounds like that may be happening.
 

lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
7,359
Reason
Lost a loved one
Diagnosis
09/2009
Country
US
State
WA
Hi, Bob, I'd be happy to help you adjust your settings, as have for many here. It does sound like they could use some updating. I'll PM you. EDIT: I can't actually PM you right now, due to a glitch in the new software.

Best,
Laurie
 
Last edited:

HiBob

New member
Joined
Feb 9, 2017
Messages
9
Reason
PALS
Diagnosis
1/2017
Country
US
State
Michigan
Thank you Nuts and Laurie for responding. I remember seeing posts in the past that discussed Trilogy settings. I really didn't pay attention to them at the time. I tried a search, wanting educate myself, but came up with nothing. I will talk to RT tomorrow and see if she has any suggestions.
 

nona

Active member
Joined
Oct 1, 2018
Messages
57
Reason
PALS
Diagnosis
02/2015
Country
US
State
NH
I have used the Trilogy for four years and in my experience the RT will not adjust the settings without doctor's orders. Do you have a sleep doc or pulmonologist you could contact? Or could you get a referral? I see a sleep doc in my ALS clinic and we always review and discuss my settings.
 
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