Hal
Active member
- Joined
- Mar 4, 2022
- Messages
- 35
- Reason
- PALS
- Diagnosis
- 09/2021
- Country
- US
- State
- FL
- City
- Amelia Island
Question …. Is anyone else concerned about the timeline protocol that exists with most trials? While I am one year into a diagnosis, I am now hitting the 3 year mark in regards to when I perceived my initial symptoms started. This means that I essentially will no longer qualify for any trials. Given ALS effects everyone in a different way, it is hard to understand the science behind creating a timeline “cut” especially when pretty much all of the trials are not able to recruit enough patients to generate a data stable sample size. Any thoughts?