Trial for CALS

[Nikki J]

This is virtual and there is nothing in the posted criteria that says you must be in the UK

it is for adult family caregivers of PALS who are using a feeding tube and/or bipap or vent there is an exclusion if you are receiving counseling or psychiatric care

Virtual Peer-to-peer Support Programme for Carers of MND - Full Text View - ClinicalTrials.gov

Virtual Peer-to-peer Support Programme for Carers of MND - Full Text View.

clinicaltrials.gov

 

[jonico]

Very interesting Nikki. It seems like a very important study. On one hand I would have loved to participate while still a CALS, on the other hand, to be honest I doubt I would have, for the exact reason the study exists...it was all so challenging and all-consuming. Still, I love the concept and I hope it proves very beneficial. I'd love to hear how it goes, especially if anyone in this community goes for it.

Thanks for sharing...Jon

 

[Nikki J]

If anyone does contact them do let us know. As I said it doesn’t say UK only but I am sure the meeting times are geared to UK schedules.