km2149
Member
- Joined
- Mar 6, 2014
- Messages
- 29
- Reason
- PALS
- Diagnosis
- 04/2011
- Country
- US
- State
- ia
- City
- g
brainstorm's mesychamel stem cell drug trial is finished and the results will be announced on January 5th. sounds like the results are very very very good. progression slowed/stopped with several patients and several patients got better in a lot of areas. the fda will get the results that day as well. if patients want to finally have a quality treatment then us patients have to put the heat on the fda to make this available asap. patients can't rely on the als association and other non profits to help get this available because they have no financial incentives to get this available sooner along with other non profits helping to find a treatment or supporting als. I say this because it's the truth. brainstorm is the only place marketing the fact that this trial is completed and successful. this should be really big news and for whatever reason it's not and hasn't been. so come on folks when the results come out n a few days we have to start emailing and ccalling the fda to get on this and get it on the market. I went to China in May for a similar type stem cell treatment and its working. I've gotten a little better and haven't gotten any worse since may when I wwent. you can Google and read about brainstorms trial and how excited they are. I just can't believe how little news this has been.
