Travel to friend’s house

kljack16

New member
Joined
Sep 18, 2020
Messages
6
Reason
CALS
Diagnosis
08/2020
Country
US
State
MS
City
Starkville
I see a lot of threads about travel, but what happens when we get there? Our friends built a fantastic new house, but every bedroom/full bathroom is upstairs.

My husband is still mobile, but stairs are difficult/dangerous and by July, when we would go, his mobility will likely be even less.

Are there any options for portable beds that would be safe? I’m thinking I can give him a sponge bath in the half bath downstairs, and he can use that as his toilet (I’ll have to measure if he’s wheelchair bound by then).

Any advice on how to navigate this? Or maybe it’s just best not to go, but it’s a place he loves going and looks forward to every year. I’ve looked for rentals nearby and there aren’t any.

Thank you in advance.
Kelli
 

lgelb

Moderator
Forum Supporter
Joined
Nov 5, 2009
Messages
9,633
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
You can buy cot and mattress combinations, going as high off the floor as you can (you can get risers that go on the legs) delivered to your friends. If stairs are difficult now, I would definitely not plan for their use in July.

Alternatively, you could ask your friends to network with their nearby friends/their friends and so on, and try to find you somewhere to stay. Facebook neighborhood groups, NextDoor, etc. can be helpful in getting the word out.
 

Bestfriends14

Very helpful member
Forum Supporter
Joined
May 7, 2017
Messages
1,098
Reason
CALS
Diagnosis
05/2017
Country
CA
State
AB
City
CALGARY
Hi Keli,

Make a plan for getting into their house, as well. What is the entrance to the house like? As for the half bath downstairs, there are loads of options for rolling commode chairs that are inexpensive. We ordered ours from Walmart when we realised my husband's chair wouldn't fit into either of our bathrooms, nor would the hoyer lift.

Speaking of, if your husband is possibly facing a wheelchair by July, you'll need a hoyer lift if he's unable to transfer. Finally, check into a nearby ALS Society to see if they can lend equipment should you need anything. If your husband wants to go, there are ways to make it possible.
 

kljack16

New member
Joined
Sep 18, 2020
Messages
6
Reason
CALS
Diagnosis
08/2020
Country
US
State
MS
City
Starkville
Thank you!

I will look into the cot option. Just have to find one sturdy enough - my husband is tall and thin, but balance was an issue before the ALS; so you can imagine now.

Yes - stairs won’t do.

Also, I have been looking at hoyers. We are moving (our current house and town aren’t really conducive to this disease - we have to get to better medical and support options); so I’ve put off some of the future equipment needs until I know where we’ll be and more what we’ll need. As all of you know - it’s a bit overwhelming and a huge learning curve.

Thank you for responding. It is very much appreciated. 🙂
 
Last edited:

ph115

New member
Joined
Oct 21, 2020
Messages
1
Reason
PALS
Diagnosis
06/2020
Country
US
State
GA
City
Lilburn
You could rent a lift recliner for him to sleep on while visiting.
 

Fusia

Distinguished member
Forum Supporter
Joined
Oct 26, 2019
Messages
111
Reason
PALS
Diagnosis
08/2019
Country
US
State
MT
City
Big sky country
You could look into renting a hospital bed from a DME, short term, while you were at your friends' house.
 
Top