jiujitsu
Member
- Joined
- Feb 7, 2010
- Messages
- 26
- Reason
- Learn about ALS
- Country
- US
- State
- FL
- City
- Boca Raton
I know you all hear about this frequently. I have read through the archives and get mixed ansewrs as everyones case is different. I have had body wide twitching for about 3years and have had 3 emg's. Most were clean except the one in the middle show some chronic changes stemming from L5/S1. On the last emg they did not see that. I am not too concearned with the body wide twitching anymore, I guess I just kind of got used to it. What is bothering me is a pulse like twitch that I get here and there in my tongue. It usually comes on only a couple times a year and stays for about 6 hours. Recently though it has come more frequently and stayed longer. It usually is closer to the tip of my tounge and literally pulsates like a heartbeat. It is probably no larger then a pencil eraser. My concern is that my doctor does not beleive in benign tongue twitching but can offer no explaination to what it is. I did make another appointment with him and I am not trying to diagnose over the internet. I am just wondering if anyone else had this before bulbar onset. Thank you all for any information provided.