Hello everyone. Just using this thread as a way to vent, so I understand if nobody replies.
Ever since Thursday night, I've had really bad fasciculations on my tongue. I had gotten occasional twitching there, but nothing as bad as this.
Of course, when you start getting these strong twitches and you're in the middle of EMGs and nerve conduction tests, one of the first things you think of is "bulbar onset ALS." But I don't get it. My fasciculations have been in my calves, mostly, and sometimes jump to my knees, buttocks, thighs, hands, neck, arms, feet, etc. (those are never for more than a few minutes, but still strong enough to be noticeable even when I'm wearing clothing and can't see them) I've even gotten them on my face, especially around my mouth. I remember once riding the train and getting a fasciculation on my left cheek that lasted seven or eight minutes. This is the first time fasciculations have been constant for multiple days in another part of my body that aren't my calves, though.
I don't understand why my fascics have suddenly jumped from my legs onto my tongue. Even as I type this, I'm getting strong twitches on my tongue.
I've been taking neurontin at night to relieve the twitching (it hasn't seemed to do much, though), and my doctor prescribed klonopin to calm me down during the day and help me sleep at night (that one has helped, I have a feeling I would be much more freaked out than I am if it weren't for that particular medication.
I'm struck by something my neurologist back in Asia said after inspecting my tongue and failing to find fascics (I wasn't having them there at that point in time). He said "In my experience, I have never seen benign fasciculations of the tongue."
Sorry for the long post. Just worried, and scared.
Ever since Thursday night, I've had really bad fasciculations on my tongue. I had gotten occasional twitching there, but nothing as bad as this.
Of course, when you start getting these strong twitches and you're in the middle of EMGs and nerve conduction tests, one of the first things you think of is "bulbar onset ALS." But I don't get it. My fasciculations have been in my calves, mostly, and sometimes jump to my knees, buttocks, thighs, hands, neck, arms, feet, etc. (those are never for more than a few minutes, but still strong enough to be noticeable even when I'm wearing clothing and can't see them) I've even gotten them on my face, especially around my mouth. I remember once riding the train and getting a fasciculation on my left cheek that lasted seven or eight minutes. This is the first time fasciculations have been constant for multiple days in another part of my body that aren't my calves, though.
I don't understand why my fascics have suddenly jumped from my legs onto my tongue. Even as I type this, I'm getting strong twitches on my tongue.
I've been taking neurontin at night to relieve the twitching (it hasn't seemed to do much, though), and my doctor prescribed klonopin to calm me down during the day and help me sleep at night (that one has helped, I have a feeling I would be much more freaked out than I am if it weren't for that particular medication.
I'm struck by something my neurologist back in Asia said after inspecting my tongue and failing to find fascics (I wasn't having them there at that point in time). He said "In my experience, I have never seen benign fasciculations of the tongue."
Sorry for the long post. Just worried, and scared.