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laura1920

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Hi my name is Laura and I been twitching for 16 months now, I had a emg at the 4th month of my twitching and came back normal no fasciculations also my blood work and physical exams. Now I'm so scared cause.I notice my tongue is twitching and I saw a video post in YouTube a mnd tongue fasciculation and I notice a twitch that looks like the.one I had on my tongue once like a piece of muscle been pulled coming and going I don't have speech problems or swallow issues but I get so anxious about it .... can u please help
Me.. I'm so scared I'm 26yrs old . Thank u so much ... my pray is always with u. God bless all.
 

laura1920

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Sorry I forgot to add that I didn't get a emg of my tongue , just 3 limbs and paraspinal . Can that be enougt?
 

brooksea

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What do you do for a living? What kind of exercise do you do? Did the the doc not tell you of BFS?
 

laura1920

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I was seen by a als specialist he say everything was OK , nothing to worry about he diagnose me with myoclonus.
But I'm so scared about tongue twiches ,he check my tongue once cause I ask him to do it. Was OK . But my mistake was too search in YouTube about tongue fasciculations I see one video of a mnd and one twitch that he had was exactly like mine. I just had it once I never see it againg but it was fixated in my mind . I can move my tongue all ways and my twiching start body wide 16 months ago... it wasn't a rippling fasc was more like a muscle piece coming and going for some secs. In see it cause I was doing some strength test on it around 2months ago, I didn't get scared about it till a saw that video .
 

laura1920

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I have 2 beautiful children 5 and 2 , I really don't exercise too much ,I like to paint I do'not now too much but I'm learning.
 

Ms. Pie

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Congratulations. So far, you do not have ALS. If you have anymore questions, call your doctor. Good luck to you Dear! Enjoy your children! :)
 

laura1920

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Thanks ms .pie sorry for all my ? But I'm so scared sometimes . Tongue twiches scare me a lot , is it true that speeching and swallow problems came first? I have and appointment Oct 15 but is too long the wait I just want to ask here I feel so scared right now I can't even sleep this days. I read that fasc are constant I have it once around 2 months ago. I never see it again but was so weird for me that when I saw that video I panicked do u think that is a bad sign for me.....
 

Ms. Pie

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I'm afraid you won't get any answers here Sweets. We aren't qualified to diagnosis you. Your doctors are though. If I were you I'd be full of joy that my ALS specialist said I had nothing to worry about. I do know that everyone's tongue twitches. Ask your kids to stick out their tongues. They will twitch too.
 

nikolab

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Laura,

I think you should to plan a third baby !

You do not have als.
 

laura1920

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Thanks ms. Pie for ur answers , I call them again and explained that Im so scared and they give me a appointment for next Tuesday .... maybe my tongue was all tired of so much testing, sometimes it gets sore ..... I always check it at rest like my neuro did for about 30 secs ,but I don't now nothing about how twiches have too look ,mine does have some movement till is all rested then nothing.... but my mind is always focusing in the weird things I have chance too see like that twitch . I really appreciate you take time to answer my ? . God bless u . Thanks so much.
 

laura1920

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Maybe Nikolab thats a good idea. My kids are a blessing for me .... love them so much.
 

Luke

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I'm glad you got a sooner appointment. Hopefully there you can get all your questions answered and get some good reassurance. Take care.
 

notme

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Everyone twitches from time to time, even in the tongue. With ALS, there would be other bulbar issues as well. Honestly, I can't believe you're freaked over a tongue twitching g ONCE.

you've had clear EMGS. You don't have ALS per your doctors. Go enjoy your children, and give up this ALS obsessionnbefore you let it destroy your life.
 

laura1920

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Thanks for the time ur giving me answering my questions. I just freaked out when I saw that video cause the same type of twitch. He had a rippling and another in other spot of the tongue that looks exactly like mine but mine was faster and just last some secs .... so I thought the worse like always and I could tell I provoke it ,with my strength test ...... you guys help me so much and wright explain to me that bening twiches looked the same. I thought there was a difference in the way they looked. I also read that if drs can see a difference would be a lot easier to DX. Thanks so much I appreciate ur answers, Gob bless ya all...
 
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