tini
Member
- Joined
- Nov 21, 2020
- Messages
- 11
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- SK
Hello, sorry, I posted here before - but the topic is closed now. Could you please help me and give me some advice or your opinion? I really don’t know what to do - what kind of diagnose I could have. Sorry for my english but it is not my native language. Thank you just to read my problem and maybe give me some advice or your opinion. I know the people here are in much harder situation than me - I appreciate your help but I’m really concerned and scared about my symptom.
Since november I have problems with my tongue. It started to change with some identitation and waves on it which are mostly in the middle - but now - 10 months later - it looks like it is atrophied. I noticed minor change with pronouncing letters with - SL or TL… but not the way that I pronounce them slowly or hard to speak them - i can speak fast and move my tongue without problems, articulate without problems too, but while I speak words with SL, TL - I can feel a ,,smack,, sound somewhere in the back of my mouth - by the sides of the tongue - ( something like there is more air in my mouth because of the tongue change - that it is not so big and fleshly than it was before ). I really noticed this change with my tongue - atrophy and change with pronouncing SL , TL , .. It wasn’t there before. Sometimes I have some minor burning or tingling feeling on tongue but not often.
Accept my problem with the tongue I don’t have at the moment any other problems with movement or speaking or swallowing. But I can confirm the tongue atrophy is progressing, because in the period of 10 months it changed totally with some dents and waves on it and it really start to look like it is atrophied.
I had 4 clean EMGs in one year period. Every time they did whole body EMG include bulbar region. Last time they did EMG from my tongue too ( they put needle inside) and it was clean again.
I don’t understand from what i can have tongue atrophy.
Could it be ALS despite of clean EMGs?
I include a picture of my tongue. (mod note- removed as unnecessary)
Thank you!
Since november I have problems with my tongue. It started to change with some identitation and waves on it which are mostly in the middle - but now - 10 months later - it looks like it is atrophied. I noticed minor change with pronouncing letters with - SL or TL… but not the way that I pronounce them slowly or hard to speak them - i can speak fast and move my tongue without problems, articulate without problems too, but while I speak words with SL, TL - I can feel a ,,smack,, sound somewhere in the back of my mouth - by the sides of the tongue - ( something like there is more air in my mouth because of the tongue change - that it is not so big and fleshly than it was before ). I really noticed this change with my tongue - atrophy and change with pronouncing SL , TL , .. It wasn’t there before. Sometimes I have some minor burning or tingling feeling on tongue but not often.
Accept my problem with the tongue I don’t have at the moment any other problems with movement or speaking or swallowing. But I can confirm the tongue atrophy is progressing, because in the period of 10 months it changed totally with some dents and waves on it and it really start to look like it is atrophied.
I had 4 clean EMGs in one year period. Every time they did whole body EMG include bulbar region. Last time they did EMG from my tongue too ( they put needle inside) and it was clean again.
I don’t understand from what i can have tongue atrophy.
Could it be ALS despite of clean EMGs?
I include a picture of my tongue. (mod note- removed as unnecessary)
Thank you!
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