scienceguy
New member
- Joined
- Jan 27, 2019
- Messages
- 7
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CA
- State
- ON
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Hello,
I posted before in this thread: Tongue symptoms
First off, thank you for your patience.
I have had issues with my tongue for about a year now -- they started concurrently with a lymphoma in the neck. I started noticing some mild atrophy in June 2019, but as of last December, no doctor that I showed it to noted anything wrong. I was somewhat reassured, although I did feel like something was wrong.
Over the last month or so, I have noticed an increase in the atrophy on the left half of my tongue -- i.e. the side where the swollen lymph node was. The thing is that my lymphoma was successfully treated. I feel like it is becoming pretty obvious that some of the muscle is shrinking. I do feel that there is a chunk of my tongue that's smaller when I speak, although my speech is not obviously slurred at this point in time.
Last time I saw my GP (last November), she acknowledged that the was some asymmetry in my tongue, but wasn't overly worried about it. Things seem that have worsened, so I am planning to go see her again to show her how things have evolved.
In the meantime, I was hoping you could answer a few questions that I have:
1) I have some atrophy, but no obvious tongue fasciculations or cramps at this point in time. Would that be unusual in bulbar ALS?
2) I noticed the start of this atrophy in June 2019 -- about 9 months ago. Rationally speaking, it is likely that I would have more obvious issues by now if it were bulbar ALS. Is this reasonable?
Cordially,
scienceguy
I posted before in this thread: Tongue symptoms
First off, thank you for your patience.
I have had issues with my tongue for about a year now -- they started concurrently with a lymphoma in the neck. I started noticing some mild atrophy in June 2019, but as of last December, no doctor that I showed it to noted anything wrong. I was somewhat reassured, although I did feel like something was wrong.
Over the last month or so, I have noticed an increase in the atrophy on the left half of my tongue -- i.e. the side where the swollen lymph node was. The thing is that my lymphoma was successfully treated. I feel like it is becoming pretty obvious that some of the muscle is shrinking. I do feel that there is a chunk of my tongue that's smaller when I speak, although my speech is not obviously slurred at this point in time.
Last time I saw my GP (last November), she acknowledged that the was some asymmetry in my tongue, but wasn't overly worried about it. Things seem that have worsened, so I am planning to go see her again to show her how things have evolved.
In the meantime, I was hoping you could answer a few questions that I have:
1) I have some atrophy, but no obvious tongue fasciculations or cramps at this point in time. Would that be unusual in bulbar ALS?
2) I noticed the start of this atrophy in June 2019 -- about 9 months ago. Rationally speaking, it is likely that I would have more obvious issues by now if it were bulbar ALS. Is this reasonable?
Cordially,
scienceguy