Tedstehr
Distinguished member
- Joined
- Aug 25, 2017
- Messages
- 199
- Reason
- PALS
- Diagnosis
- 08/2017
- Country
- CA
- State
- BC
- City
- New Westminster
I was at an ALS board meeting a few months ago and the top research scientist for ALS in BC spoke positively about an Antisense drug that showed improvement in SOD1 Familial ALS patients. I tried to research and I found Tofersen. Has anyone else heard more about this? I would have thought it would be big news.