mcdillydog
Member
- Joined
- Jan 25, 2009
- Messages
- 12
- Reason
- Learn about ALS
- Country
- US
- State
- colorado
- City
- denver
Hello,
I am new to the forum and I do not know all the technical terms for ALS tests and rules of the forum yet but I wanted to share my test results with you and see what you think.
I have been having twitches in my left foot on top and bottom, calf, shin, around the knee, thigh and quads. My left hand also has twitches especially between the thumb and pointing finger. I was refer to a Neurologist and we did several tests today with mixed results. I do not have copies of the test results yet so forgive my non-medical ramble below.
The doctor said my reflex tests were normal. My strength was good. However my EMG shows diffuse mild denervation on my left arm and leg. He said there are two "wave forms" that may prove you have ALS and that neither of those forms were present in my EMG. He said we may have caught the disease early and that they will appear in later tests. He also said my twitches (fasciculations) were about as bad as he has seen. He also did some nerve velocity tests (I think that is what it is called) and my Sural nerve is suffering from a sensory delay. He told me that although most literature says sensory nerves are not impacted by ALS, new research shows that this nerve is in fact impacted. I found some articles on the internet that support this Sural Nerve and ALS link. He also did blood tests which will be back in a few weeks. I asked the doctor if he thought I had ALS and he said we need to run the MRI and blood tests before he gives me a diagnosis. He said that my test results do not all point to ALS so not to worry until they do.
I am worried anyway.
David aka Mcdillydog
I am new to the forum and I do not know all the technical terms for ALS tests and rules of the forum yet but I wanted to share my test results with you and see what you think.
I have been having twitches in my left foot on top and bottom, calf, shin, around the knee, thigh and quads. My left hand also has twitches especially between the thumb and pointing finger. I was refer to a Neurologist and we did several tests today with mixed results. I do not have copies of the test results yet so forgive my non-medical ramble below.
The doctor said my reflex tests were normal. My strength was good. However my EMG shows diffuse mild denervation on my left arm and leg. He said there are two "wave forms" that may prove you have ALS and that neither of those forms were present in my EMG. He said we may have caught the disease early and that they will appear in later tests. He also said my twitches (fasciculations) were about as bad as he has seen. He also did some nerve velocity tests (I think that is what it is called) and my Sural nerve is suffering from a sensory delay. He told me that although most literature says sensory nerves are not impacted by ALS, new research shows that this nerve is in fact impacted. I found some articles on the internet that support this Sural Nerve and ALS link. He also did blood tests which will be back in a few weeks. I asked the doctor if he thought I had ALS and he said we need to run the MRI and blood tests before he gives me a diagnosis. He said that my test results do not all point to ALS so not to worry until they do.
I am worried anyway.
David aka Mcdillydog