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billyd

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Joined
Oct 11, 2007
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47
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Learn about ALS
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US
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New Jersey
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Dennisville
Today I go to the clinic at Penn Univ Hospital. I find little reason for optomism as I feel so ill. I pray for something treatable but with the revelation on why I can't sleep for more than 2 hours with or without drugs, short of breath, I am even more concerned. I had a spirometry test yesterday at the pulmonologist which was 90% predicted which is strange with the breathing issues. I took my son to the bustop this am for school and I know this is affecting him and I have not told him anything other than I am not feeling well right now. I know I do not have a diagnosed yet but I feel so bad with the cramping, wasting legs and butt and tremors in arms etc that I know this is not good. Anyway thanks to all who have replied to my concerns and wish me luck.
 

ltr

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Feb 11, 2007
Messages
690
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US
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I am praying for you today Billy. I have felt exactly the way you are describing in the beginning of my illness and still get flare-ups of that same feeling. It is devastating.
 

crystalkk

Very helpful member
Joined
Sep 11, 2007
Messages
1,210
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Learn about ALS
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pennsylvania
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philadelphia
Hi billy,

good luck with your appointment!
Let us know when you get back, hopefully some kind of good news.
 

vmd

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581
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idaho
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We'll be thinking of you, billy.
 

Just J

Distinguished member
Joined
Oct 30, 2007
Messages
300
Reason
DX UMND/PLS
Diagnosis
01/2010
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US
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MD
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Havre de Grace
Billy, we are thinking postive thougths for you. Please keep us posted.
 

ltr

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Messages
690
Country
US
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NY
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Billy, sure hope things went well for you today. Please let us know!
 

Gina

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Joined
Nov 1, 2007
Messages
219
Reason
CALS
Diagnosis
04/2004
Country
CA
State
ONTARIO
City
CAMBRIDGE
Hi Billy,thinking about you and hoping you will keep us posted.I am praying that you will have something that is treatable.......hugs Gina
 

Icanmanz

Senior member
Joined
Jul 14, 2007
Messages
947
Reason
PALS
Country
Uni
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Texas
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Tomball
Good luck, billy, and God bless! By the way, how old is your son, if you do not mind me asking? Just curious!
You are in my prayers!

Irma
 
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