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today was the end

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GigiDi

Member
Joined
Nov 23, 2008
Messages
16
Reason
Loved one DX
Country
US
State
new england
City
Newport, Philadelphia
mom made it through christmas for her kids. like she wanted to do and said she would.

her soul is at rest now.

she passed with my my next door neighbor & best friends mom, Sandi, holding her hand while our family was watching the eagles game. my dad, out of nowhere, reached for her pulse and felt none. my sister, myself, and my dad were all by her side in the living room.

and that's the best way to explain it. it was a corageous fight.... five years. i'll always miss my mom.

someone was always holding her hand. someone was always over. this was fitting though, since Sandi was with us the whole way & over almost every week night spending time with my family.

mom knows she was never alone.
 

brendapals

Senior member
Joined
Jul 6, 2008
Messages
953
Reason
PALS
Diagnosis
06/2008
Country
US
State
any
City
any
My heartfelt sympathy to you and your family, and may God bless you with wonderful memories of your mom,
-brenda
 

BethU

Extremely helpful member
Joined
May 11, 2008
Messages
2,644
Reason
PALS
Diagnosis
05/2008
Country
US
State
California
City
Los Angeles
I'm so sorry you have lost such a wonderful mother. You all gave her so much love and support. Blessings to you all.
 

OhioArt2

Member
Joined
Aug 17, 2007
Messages
16
Reason
CALS
Country
US
State
OH
City
Toledo
My sympathies to you and your family. It's wonderful that she was surrounded by all of you.

My mom passed this Christmas Eve. She decided to sneak out without any of us though...
 

Zaphoon

Extremely helpful member
Joined
Aug 2, 2008
Messages
2,855
Reason
DX UMND/PLS
Diagnosis
08/2011
Country
US
State
Missouri
City
Springfield
My condolences on the loss of your terrific mother. Blessings on you for all of your wonderful support to her these past 5 years.

Zaphoon
 

califsand

Distinguished member
Joined
Sep 21, 2007
Messages
237
Diagnosis
01/2004
Country
US
State
ca
City
sant barbara
So sorry Gigi but happy for your mom that she made her goals. I imagine it brought her great peace to have accomplished being here for Christmas with her family. Now she is soaring!

Take care,

Sandy
 

GigiDi

Member
Joined
Nov 23, 2008
Messages
16
Reason
Loved one DX
Country
US
State
new england
City
Newport, Philadelphia
My sympathies to you and your family. It's wonderful that she was surrounded by all of you.

My mom passed this Christmas Eve. She decided to sneak out without any of us though...


i am so so sorry to hear that. my condolences. they say that when someone passes away they chose a peaceful time that is best for them and for their own reason- whatever that may be... my house had been filled to the brim with relatives & dear friends all week and finally there was a moment tonight of peace shared just between myself, my sister, and my dad (and neighbor) mom was waiting for a peaceful time with the fam to let go and thats exactly what she did... couldn't have been better. it's a night i will never forget for as long as i live.
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
My deepest sympathies to you and your family at this time.

AL.
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
I am sorry for the loss of your Mom. It sounds like she went the way she may have wanted- quietly and with family nearby. I know this thought might not help your pain, but for the one making the transition, it sounds like the way to go. At least this is how I hope my last days will be, anyway. Still, not easy on the family. Be sure to keep in touch! Cindy
 

kristenl

New member
Joined
Dec 29, 2008
Messages
1
Reason
Loved one DX
Country
US
State
ri
City
smithfield
GigiDi

I am so sorry to hear about your Mom's passing. May you find comfort in your family and your memories of her. I understand your loss. My mother died November 25, 2008 after an 8 month battle with this horrible disease. Like you, we were at her side but she was in a hospital hooked up to a vent and she made it very clear that she did not want any machines so we made the difficult decision but let her die with the dignity she deserved. I will keep you family in my prayers.
 

brooksea

Legendary member
Joined
Sep 27, 2006
Messages
5,171
Reason
Other
Country
HM
I'm very sorry for your loss. So happy you and your family were able to be there with her. May she rest in peace...
 

GigiDi

Member
Joined
Nov 23, 2008
Messages
16
Reason
Loved one DX
Country
US
State
new england
City
Newport, Philadelphia
thanks. i've never gotten to talk about her or express what kind of a woman she was... even amongst others... i feel like she's so anonymous.

my mom (Diane) was a Kindergarten teacher and she was very dedicated and passionate about her lessons and her students. but nothing came before her own kids. i'm 24, my sister is 21, and my brother is 18. she was a runner, a skier, and a scuba diver. she lived by the beach and was always spending time by the sea. she loved nothing more than to watch our tennis matches, soccer games, & track meets... she was a ccd teacher and a devout Catholic until the end. her faith is what kept her going. she was strong physically and mentally.

she was diagnosed in the fall of '04 but felt symptoms up to a year before that. she lived as normally as she could for as long as she could. eventually the disease forced her to stop driving, stop running... it took her love of skiing and her boat away from her. she had to retire from her career. her speech was taken away and replaced by a dynavox. she lost all movement in her arms and her legs. she did not chose to have a feeding tube. my dad sat and fed her for hours each day. friends and neighbors and relatives came over every single day to spend time with her and feed her her meals. thinking of her asking for "help?" to put her sandwich into her mouth just breaks my heart to this moment. thinking of how such a strong loving woman became so helpless.... my heart is so broken.

she fought hard for her family for five long years. her strong heart and the love between her, my father, and the rest of my family kept her with us for so long. we didn't think she would make it to thanksgiving this year... but instead she held on until christmas. her hospice nurse said she had no idea how it was possible she made it that far. she did it for us. i had been away for work but came back december 22nd. she opened her eyes wide enough to see me come in the door, and that was the last time she had them open. she did not have the strength after that. she lingered until the 28th, but i'm sure she could hear us. and there were so many people over at all times. she waited for a private time to pass.

my family was sitting silently last night watching the eagles game just like any other evening. me, my sister, neighbor, & my dad. peaceful and quiet. out the back door through the trees was this blazing vivid sunset... indescribably beautiful. my dog quietly laid down at her feet (something he never does) and my dad felt for a pulse and there was none. i sat with my mom holding her hand, kissed her one last time, and that was our last beautiful moment. it's so hard to talk about. it isn't fair. she was so thin, like a skeleton... the disease reduced her to nothing. i felt like i could have sat there holding her little limp cold hand forever. there have been so many family members over during the last week. mom was a good judge of character and had nothing but the world's greatest friends who never left her or our family's side. they literally picked up our cross and carried it for us along the way at times. her funeral mass is on friday. hopefully i'll be able to calm down in between... having a hard time keeping it together for my little brother & sister & my dad.
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
A beautiful tribute to someone I am sure was a beautiful person and raised some fine children.

AL.
 

rocmg

Distinguished member
Joined
Dec 29, 2008
Messages
388
Reason
PALS
Country
UK
State
N/A
City
N/A
I'm 24 too and may just beginning this journey with my mum, although I dearly hope not.

Be comforted now that she is at rest. You will miss her but we must believe that she is gone to a better place and that she'll still be there when you call on her in your mind.

god bless.
 

Jeannie

Distinguished member
Joined
Dec 19, 2007
Messages
222
Reason
Loved one DX
Diagnosis
01/2008
Country
US
State
NJ
City
Vernon
I wanted to thank you for sharing some of who your mom was with us. She sounds llike a fabulous person. I am so sorry that she had to battle this horrible disease. My heart breaks for you and your siblings and dad. What I have learned is let yourself grieve, you will all be there for each other even if you all break down in each others arms. Your mothers spirit and love will help you through the next difficult few days and upcomming difficult weeks and months.
There is no love like that of a mother, I am sorry for you.
You are in my thoughts, just think, your mom is in heaven, enjoying her running and she is whole again.
In friendship
Jeannie
 
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