Pan,
This is not new to me. I have been a caregiver full time for my wife since Nov,2010. That was when she quit walking. I too am retirement age and was forced into it because of this hideous disease. My wife is such a brave soul. She rarely complains and I have not always been patient with her. She has hit a plateau now, and I can not tell of any further progression. We have many friends that volunteer their time for me to get out and she has really enjoyed their company. It is quite overwhelming at the beginning when you have to learn so much so fast, but you will make it. Trust God to see you through it. He will. I do empathize with you. No ones knows except those that have been there. Know that I am praying for you and your husband and pray that God will ease your mind with all the new things you are having to learn and do.