To poo or not to poo..

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poppy62 said:
Hello, and again, warm thanks for all the information and advice from everybody.
I read out to him messages re help to poo...the suppositries were well received...and we are reviewing dietary/fluid intakes too.
I have one stubborn hubby, and like the resistance to peg/tube feed, he also doesn't want any kind of artificial help to help him breathe...
He has long-term anxiety issues, and fears everything new. We dont know enough about the Cpap and Bipap and part of me doesn't want to know but a bigger part does, it's reassuring to read about the benefits of the machines but how do I get him to even think about it?
Any words of advice I can share with him are very welcome.
He sat with me and read the posts, he doesn't mind what I ask, he is glad we have found a new source of support, especially for me.
Hope you are all keeping as well as you can be...

PS How do I access archived information please?
Click to expand...

You don't want a Cpap there is a difference you want to get him a Bipap ST machine if he doesn't take a breath in 12 seconds it will push air in.
Also I drink half glass of warm prune juice but then I like it but it keeps me regular
 
Please let him know I have known several PALS that also refused invasive help, such as the PEG and tracheostomy. And I don't blame him one bit... it's a personal choice. However, several of those folks had "extra" GOOD years by using the BiPAP, so it's at least worth investigating a bit! Really, BiPAP is not that big of a deal. It is not invasive whatsoever. If you feel you want to use it, you do. If you don't, you don't. It can be tricky to get used to it, and most people on here will tell you stories about how hard it was, but then you have people like me, who had no trouble whatsoever! I strapped that sucker on the first night and woke up 10 hours later, refreshed and had not slept that well in over a year! What will it hurt to try it out? And if it doesn't feel comfortable at first, try a different mask. There are soooo many kinds and sizes out there! I do hope for his sake (and yours) that he will at least consent to try it. Everything is so scary with this disease, and I really do understand the reluctance to try all this crazy stuff, but some of it will make what life he has left to live so much easier for both of you!

To access the archives, use the Search function. To do that, go all the way up to the top of this page. On the horizontal blue bar, look for the word "search." Click on the little down arrow right next to it and a little menu will drop down. Type what you want to search for (bipap or bowel movements or whatever) and hit enter. It should give you a whole list of related threads for you to read. There is really some great info in them!
 
I was in no way suggesting using your Bipap without humidity. I said this: It's better '
to put it in the air instead of through the machine. We keep the humidity at 50% all
the time, with a cold air humidifier and a gauge to measure it. The pulmonary specialist
told us that it causes less troubles. We do what he says.

Also, my PALS was prescribed a Cpap first. Then after 1 1/2 yrs into the diagnosed was switched
to a Bipap. It is the specialist that determines which one you need and when.

Don't put words in my mouth or come to conclusions about what I say that are different
than intended. Thank you very much.
 
I'll be the bigger person and just say,

No problem Marjorie. Moving along...
 
Hello, and thanks for the advice folks..
Caldona, he doesn't like prunes unfortunately...but I do and suffer their effects sometimes!
Marjorie and Sarah, we've had a mini break-through this morning...
When we get to see the respiratory physician, clive has agreed to get whatever is on offer re a machine...so at least it is in the house if he wants to try it rather than being without. He still says no tube for feeding though..despite saying he'd consider it after Jen told us how her hubby had it done.
We have also been talking about whether the bedroom is too warm although the heating is off and we have the window open?
He does breathe through his mouth so that would dry him out maybe? Roll on our appointment...
 
poppy62 said:
Hello, and thanks for the advice folks..
Caldona, he doesn't like prunes unfortunately...but I do and suffer their effects sometimes!
Marjorie and Sarah, we've had a mini break-through this morning...
When we get to see the respiratory physician, clive has agreed to get whatever is on offer re a machine...so at least it is in the house if he wants to try it rather than being without. He still says no tube for feeding though..despite saying he'd consider it after Jen told us how her hubby had it done.
We have also been talking about whether the bedroom is too warm although the heating is off and we have the window open?
He does breathe through his mouth so that would dry him out maybe? Roll on our appointment...
Click to expand...

I am a mouth breather also, so when you get a bipap get both a nasal mask I did not like the one that went over my nose this one that I have has a soft rubber that goes in my nose to to keep it from leaking I use this during the day and the face mask for night because with the nasal I would snort all night. But I would not be without it
The bipap has distilled water in it, sometimes my mouth is dry
 
About BiPap: I got used to wearing the nasal pillows by wearing them during the day while reading or watching TV or a movie. I had been breathing by mouth at night, so thought I would need to use a mask while in bed...I'm delighted to learn that the nasal pillows have eliminated the mouth breathing and I'm able to wear them about 5-6 hours at night.
 
I'm a mouth breather too. I have two different full face masks, but then I also got a hybrid mask... it has nasal pillows on top of a mouth covering... very nice! Keep that one in mind to try too!
 
glupavomomiche said:
I'm a mouth breather too. I have two different full face masks, but then I also got a hybrid mask... it has nasal pillows on top of a mouth covering... very nice! Keep that one in mind to try too!
Click to expand...

I like the the way your mask sounds were did you get it
 
Thank you very much I check this out and I like it mine makes sores on my nose this would not do that but before I buy it I am going to see if Medicare will pay for it they pay for one ever so many months. I bought one that is suppose to hold chin up but it leaks
 
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I love the way everyone is so helpful, sharing their tips and experience, and giving words of encouragement and advice.
I'm so glad I joined...
 
And we're glad you joined too, poppy! :D
 
You are all so kind.
Thank you :)
 
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