olly
Extremely helpful member
- Joined
- Jan 10, 2008
- Messages
- 2,743
- Reason
- PALS
- Diagnosis
- 11/2007
- Country
- uk
- State
- uk
- City
- uk
.................That is the $100 question.
well,today i had an appointment due to the past several months of bulbar spasms.
said my "condition"is complexed and if baclofen is not helping with jaw/facial spasms then the last resort is botox injections but in the long run these can cause problems.
so i said i would decline for now as they have settled down a bit again but if they do get severe again i'm not sure if i should give botox a go.
other than that just going for yearly appointment and taking meds and basically carry on as much as normal is all they said .
what do you think?
just felt so deflated but you just have to remind yourself your better off then alot of people.
well,today i had an appointment due to the past several months of bulbar spasms.
said my "condition"is complexed and if baclofen is not helping with jaw/facial spasms then the last resort is botox injections but in the long run these can cause problems.
so i said i would decline for now as they have settled down a bit again but if they do get severe again i'm not sure if i should give botox a go.
other than that just going for yearly appointment and taking meds and basically carry on as much as normal is all they said .
what do you think?
just felt so deflated but you just have to remind yourself your better off then alot of people.