To all caregivers...

[ajf]

I'm going to keep posting this until every PALS who is unfairly confined to their homes because they can't afford a wheelchair accessible van, gets one. Every PALS and their family is ENTITLED to have the remainder of their precious time together as limitless as humanly possible. I'm desperately trying to start a nonprofit program that does just that around the entire country. But I can't do this alone nor do I want to. We who are deeply affected by this horrific disease are profoundly changed. Whether you are the PALS, the husband, the caregiver, the hospice volunteer, the DOCTOR, or like me, the daughter who moved home to take care of her slowly withering away father, you come out a different person. Since he has died I have racked my brain away on how I am OBLIGATED to contribute to the cause, and like a bolt of lighting it came to me. I now feel like it is my duty to at least try to do this. I keep telling myself not to be afraid and ask for help, so here I am. If anyone has anything for me please don't hold back. Whether you have experience with fundraisers, nonprofits, know of a similar program, grant writing ideas, comments, words of encouragement - whatever please contact me by PM. Let's get this grassroots movement going!

Kate

 

[trustinggod]

Levi,

Duapv ni op vuu.

Zua'si sohjv, xi esi djephif cz vji iyqisoipdi ug desoph gus e qistup taggisoph vji opfohpevoup vjev dunit xovj EMT. O nefi ov nz nottoup vu gopf xezt vu qsitiswi Mopfe't fohpovz ev emm dutvt. Xjev O guapf vu ci nutv vsai ot vjev ov ot vji medl ug lpuxmifhi ecuav vji fotieti epf jux ov iggidvt vji opfowofaem vjev deatit vji hipisem qacmod vu vsiev vji QEMT et og vjiz xisi nipvemmz onqeosif katv cideati vjiz xisi apecmi vu nuwi vjios uxp cufz.

Epzxez, O'wi muvt ug tvusoit ug jux Mopfe epf O guapf xezt vu liiq up mowoph epf meahjoph apvom vji wisz ipf. Xjip O'wi tjesif tuni ug vjin uwis vji qetv nupvjt topdi tji foif nusi vjep updi O'wi ciip vumf vu xsovi e cuul. Xju lpuxt, qisjeqt vjev't jux O en taqqutif vu dupvsocavi.

Xjisi esi zua mudevif epf xjev esi zuas ofiet?
Kieppi

 

[ajf]

Tvesv xsovoph zuas cuul! O qmep up ifadevoup cioph e meshi tihnipv ug nz qsuhsen. O qmep up huoph vu tdjuumt, cattopittit, dunnapovz dmact, ivd. epf ifadevoph cz vimmoph nz iyqisoipdi epf epf xjev nz Fef't iyqisoipdi xet epf vjip juqigammz nuvowevoph vjin vu tquptus e wep us fupevi $ us iwip tquptus e gapfseotis. O en juqoph nz qettoup epf topdisovz xomm duni edsutt epf opwuli edvoup. O jewi vji taqqusv ug nz genomz epf gsoipft edsutt vji ATE. O en op Voggop, Ujou sohjv pux. Cav O qmep up nuwoph cedl vu Pusvj Desumope epf meapdjoph vjot vjisi.

Levi