This has been a hard thread to get through. I can identify with so much of what has been said. ALS exhausts emotionally, physically and for many of us financially. So often we're between a rock and another rock. Watching this disease ravage our loved ones, our relationships, plans and ourselves. It doesn't matter where on the progression arc you are, just getting through the shock of diagnosis or getting hospice in place, it's relentless. No time off to catch your breath or gather your wits. Get your feet back under you. I don't think any sane person wouldn't want there to be an end.
There is one thing I take comfort in and it's one thing we all share. We stuck. There aren't a lot of times in life that you get to show someone that you love them for better or for worse. Unconditionally. That you will stand by them, come what may. Worse came and here we all are. Maybe a bit battered, but still standing.
Paul
Prince of Persistence
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