- Nov 1, 2013
Looking for others involved in cytokinetics clinical trial for tirasemtiv to compare notes. I am a 58 yr. male living in Durango, CO. and traveling to Phoenix. (fly/drive alternating weeks) Getting tough. I've had ALS for about 15 months. The decline seemed to stall for a few weeks when I started trial end of Sept.2013, now seems like walking is tougher. going on monthly visits after Nov. 11th.