Tomswife
Senior member
- Joined
- Aug 22, 2022
- Messages
- 688
- Reason
- Lost a loved one
- Diagnosis
- 08/2022
- Country
- US
- State
- NJ
- City
- Livingston
Hi. My husband Tom. Received his official diagnosis on August 16, 2022. Bulbar onset ALS. He is 69. When we had our first meeting with the team at Nypresby they pushed for feeding tube insert asap. (Lots of pushing) The reasoning was - do it now while you are still healthy and can tolerate the procedure.
Tom can drink liquids with ThickIt but he does cough. He does not want the tube at this point. I did encourage him to follow the Dr. advice and I explained the process based on documents we were given. Did anyone wait to have this done?
Thoughts?
Tom can drink liquids with ThickIt but he does cough. He does not want the tube at this point. I did encourage him to follow the Dr. advice and I explained the process based on documents we were given. Did anyone wait to have this done?
Thoughts?