mamaoftwo
Distinguished member
- Joined
- Aug 16, 2007
- Messages
- 224
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- US
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- NY
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- larchmont
Ive have read a few CALs and PALs on here say they then realized on diagnosis that they'd actually had symptoms for a few years prior to that. I am confused by that. While I'm still awaiting diagnosis, my symptoms are not something I could have ignored (and its been going on for 18mths). So what ALS symptoms could you possibly have that you just live with and assume are normal/nothing to be concerned about? I understand the fasiculations thing because you might have been told BFS or something but weakness, atrophy, tripping, dropping things etc?
If you think about it, it also means that the 2-5yr thing is misleading for many many people because if you have had symptoms for say 3yrs (as one PAL said the other day), then your life expectancy with ALS is nearer 8-10yrs not 2-5. Or do they typically say that you have 2-5yrs post diagnosis?
If you think about it, it also means that the 2-5yr thing is misleading for many many people because if you have had symptoms for say 3yrs (as one PAL said the other day), then your life expectancy with ALS is nearer 8-10yrs not 2-5. Or do they typically say that you have 2-5yrs post diagnosis?