time to talk

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ms.illini

New member
Joined
Nov 14, 2006
Messages
3
Reason
PALS
Country
US
State
Illinois
City
Arcola
Hello, I am ms. illini and have been living with ALS for 4 years now. I live in the middle of a cornfield in Illinois. Very few people in my area know what ALS is ,so I don't have a lot of people talk with about this crazy ride. I have enjoyed reading the post and want to be a part of this community!
 

liz

Senior member
Joined
Nov 9, 2006
Messages
642
Reason
PALS
Diagnosis
11/2006
Country
US
State
NY
City
Albany
Hi

Hi ms. illini -

I just got diagnosed a couple of weeks ago. Talking with folks here is really helping me deal with the initial shock and despair.

Four years........WOW. How are you doing out there? Who is helping you? Are you alone? With family? What kind of services are available to folks living in the middle of cornfields?

I live in a fairly populated area and there is nobody really to talk to about all of this ALS stuff here either. This forum is a real lifeline.

Liz
 

ms.illini

New member
Joined
Nov 14, 2006
Messages
3
Reason
PALS
Country
US
State
Illinois
City
Arcola
Liz, I am doing pretty good, can eat drink,and run my mouth just like always. Walking is gone (power chair), hands are starting to go and breathing is on the down slide. My mother takes care of me in the day and kyle(boyfriend) at night. Friends come and sit with me to give everyone a break. I go to a MDA clinic (about 2hours away) every 3 to 4 months. Pretty much diagnosed and sent on my way. Oh! I have 2 children (girl14,boy11) they just moved in with father,stepmom,and 2 little siblings, at the start of the school year. Thanks for replying ms. illini
 

paula B

Active member
Joined
Jul 23, 2006
Messages
87
Reason
PALS
Country
US
State
wisconsin
City
seymour
welcome to the neighborhood Ms.Illini

Ms Illini im glad you found us. I am from wisconsin. Ya got any questions just ask and someone will have an answer for ya. This is a great group to be a part of.
Take care

Paula
 

liz

Senior member
Joined
Nov 9, 2006
Messages
642
Reason
PALS
Diagnosis
11/2006
Country
US
State
NY
City
Albany
ms. illini -

Do you get to see your kids? How are they dealing with your situation?

Liz
 

GinaD

New member
Joined
Nov 14, 2006
Messages
6
Reason
PALS
Country
US
State
Oklahoma
City
Okie Dokie
Hi Ms. Illini. I just found this forum a couple of nights ago and I already feel right at home and am just reading posts like crazee! I know you will feel the same connection, it's so special to actually talk to people that know what you are going through. I hope you had a good day today and that you will have a restful night.
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Well not to be outdone. Hi there ms. illini. Welcome to our little forum. Sorry you are having to be here but glad you found us. AL.
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
Hello ms. illini . I am sure you have guessed by now that this is the place to meet new friends and gather understanding. I just wanted to weigh in with a welcome, along with everyone else. Keep in touch.
 

ms.illini

New member
Joined
Nov 14, 2006
Messages
3
Reason
PALS
Country
US
State
Illinois
City
Arcola
Thanks everyone for the warm welcome! Liz asked about my kids. Yes I see them all time. My X set up a web cam. so we chat everyday. They come home every Sat. and leave Sunday night. They have handled this Als thing better than most adults that I know. We still do great quality thing together just a little slower and with modifications. They also have a great concept of "God only gives you what you can handle ,and that he has a bigger plan for us". We are not church going family but have strong faith. I guess my moto is make your time count and pick your battles. I don't have time or the energy to waste on negitve things.
Take Care everyone
P.S. Go Illini
 

liz

Senior member
Joined
Nov 9, 2006
Messages
642
Reason
PALS
Diagnosis
11/2006
Country
US
State
NY
City
Albany
ms. illini -

It sounds like you have really come to terms with your circumstances and are making the most you can of your days. I admire your determination.

Liz
 

Paty

Distinguished member
Joined
Apr 1, 2006
Messages
194
Reason
PALS
Country
Mexico
State
Baja California
City
Mexicali
Just a warm welcome

Just a warm welcome to the forum to Ms Illini and GinaD.

Love Paty (Baja California, Mexico), Husband's caregiver
 

marlo

Active member
Joined
Feb 20, 2006
Messages
92
Hello ms,
Welcome to the forum. I have found alot of help as well as comfort from everyone here. I don't do as much talking as i use. Mostly i just read other peoples posts.

We have also been having alot of health problems with other members of my family,, so my attention has been else where. But if you want to ask,, anything please feel free. I have ALS, also, for about 2 years.
Well you take care,, and keep up the great attitude. Cause thats the best thing you can do for yourself.

Love and Prayers
Marlo
 

liz

Senior member
Joined
Nov 9, 2006
Messages
642
Reason
PALS
Diagnosis
11/2006
Country
US
State
NY
City
Albany
Marlo

Hi Marlo -

Sounds like you've really had your hands full. Hope you get a chance every now and then to take care of yourself.

Liz
 

marlo

Active member
Joined
Feb 20, 2006
Messages
92
Thanks Liz,
I think we all need to do something for ourselves once in the while. But lately i haven't had that luxury. My oldest daughter just had exploritory surgery yesterday. I'm happy to say it went very well. So hopefully she,ll be doing better soon. Then a few weeks ago,, my brother got hurt at work. He fell off a ladder and split his head open, which threw he into, seizures. He is not doing very well. The specialists are now arguing over what they think is wrong with him. Meanwhile, his wife wasn't feeling very good , so they ran some tests. Only to discover that she has a virus in her thyroid ,, so she has to have it out,, pretty soon. As if that werent' enough,,
All of my Son's and part of my "Identity" was stolen about a month ago. He's in the service, and was being transferred from Japan to South Carolina. When the shipments of his stuff started arriving,, someone broke in. They grabbed a bag,, thinking it was a laptop ,, and unfortunately,, it had all our papers in it ,, for shipping. Anyway,, thats why i have been alittle distracted from the forum. All the stress,, causes,, some bad days.

Anyway,, it is,,, in Gods hands,, so i'm sure it'll be alright. I pray ,, you all have a good day tomorrow.

Love and Prayers
Marlo
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Hi Marlo. I hope things turn the other way for you soon. Just keep telling yourself tomorrow is another day and it'll get better. It's not easy especially when you have as many things going on as you do but with your faith you will get through it. AL.
 
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