- Apr 9, 2015
I've been putting off posting this as long as I could, just holding on to any hope of a misdiagnosis but after my third clinic visit yesterday, it's time to completely accept the fact that I have ALS. I've been lurking on the forums since my original post on DIHALS in May when I first heard possible ALS or PLS. I have since progressed to wearing AFOs on both legs, walking with a cane and having Trilogy ordered for me yesterday. My neurologist said she would provide me with a diagnosis letter for disability whenever I was ready. It just amazes me that no matter how prepared you think you are for anything you could possibly hear during exams, there's always something that sucker punches you in the gut. I'm sad to be here but feel blessed to have this forum for the support that all of you provide. My hope is that I can support someone in the way that all of you have for everyone who finds their way here.