I have been going to several neurologists for 3 1/2 years now. I have had two EMGs - the most recent in Jan 2005 on my right leg that was clean. My symptoms started two and a half years ago with muscle cramping and slight fatiguing of my right arm. At times I could barely type without stopping to rest. About 12-18 months ago I started having fatigue in my right leg as well. Now I am feeling some mild cramping in my right arm and leg as well as the fatigue. I am not weak, however...I have learned the difference between fatigue and clinical weakness. I have started to have all over muscle jerking which mainly happens when I am awake. Sometimes my abdominal muscle will contract while I am laying on my side and makes me jerk. About two months ago I went on a 20-mile bike ride that went up hill most of the way and after about two hours my muscles hurt SO BADLY that I could barely walk for two days. It wasn't normal soreness...it was PAIN!
My question is...how long does it take for ALS to show up? Could I have it and it is taking a really long time to present itself? What is the timeline that most people experience? I know it is different for everyone. I have another neurologist appointment scheduled for in two weeks but I am afraid that it will be another "I have no idea what is going on" conversation and he may just tell me to keep waiting to see if I get worse over time. I am getting married next May and I am terrified that I won't be able to walk down the aisle by then! Any thoughts from you lovely people?
My question is...how long does it take for ALS to show up? Could I have it and it is taking a really long time to present itself? What is the timeline that most people experience? I know it is different for everyone. I have another neurologist appointment scheduled for in two weeks but I am afraid that it will be another "I have no idea what is going on" conversation and he may just tell me to keep waiting to see if I get worse over time. I am getting married next May and I am terrified that I won't be able to walk down the aisle by then! Any thoughts from you lovely people?